The Brain Tumor Network Inc
- Assets
- $2.9m
- Revenue
- $2.3m
- Investments
- $0.0
- Employees
- 21
- Location
- Ponte Vedra Beach, FL
- Founding
- 08/2014
- Data as of
- 12/2021
- EIN
- 46-3339186
Organization Overview
The Brain Tumor Network Inc is located in Ponte Vedra Beach, FL. The organization was established in 2014. According to its NTEE Classification (G48) the organization is classified as: Brain Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Brain Tumor Network Inc employed 21 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Brain Tumor Network Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Brain Tumor Network Inc generated $2.3m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 26.9% each year . All expenses for the organization totaled $2.0m during the year ending 12/2021. While expenses have increased by 25.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDING FREE TREATMENT-RELATED NAVIGATION SERVICES TO BRAIN TUMOR PATIENTS IN THE USA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT NAVIGATION SERVICES ARE THE CORE PROGRAM OF THE BRAIN TUMOR NETWORK (BTN). WITH THE SCARCITY OF PERSONALIZED TREATMENT INFORMATION AVAILABLE TO INDIVIDUALS IN THE USA DIAGNOSED WITH PRIMARY BRAIN TUMORS, BTN PROVIDES IMPORTANT INFORMATIONAL/NAVIGATION SERVICES TO PATIENTS, CAREGIVERS, AND CARE PROVIDERS. OUR TEAM OF NURSE NAVIGATORS AND SOCIAL WORKERS RESPOND TO ONLINE REQUESTS AND TELEPHONE INQUIRIES TO MEET PATIENTS/FAMILIES WHEREVER THEY ARE IN THEIR BRAIN TUMOR TREATMENT JOURNEY, AND TO HELP THEM GATHER THE INFORMATION THEY NEED TO EXPLORE THEIR NEXT STEPS WITH THEIR HEALTHCARE PROVIDERS. BTN NAVIGATED 586 PATIENTS NATIONWIDE DURING 2021. SERVICES PROVIDED INCLUDE: CONDUCTING PERSONALIZED CLINICAL TRIAL SEARCHES, ASSISTANCE ASCERTAINING ELIGIBILITY FOR PARTICIPATION IN IDENTIFIED TRIALS, FACILITATING SECOND OPINIONS AND CONSULTATIONS, IDENTIFYING SPECIALTY PROVIDERS NEAR PATIENTS' HOME COMMUNITIES, AND OBTAINING AND REVIEWING PATIENT RECORDS. BTN DOES NOT PROVIDE MEDICAL ADVICE, BUT DOES PROVIDE PERSONALIZED TREATMENT-RELATED INFORMATION TO EQUIP PATIENTS AND FAMILY TO ENTER INTO DECISION-MAKING CONVERSATIONS WITH THEIR HEALTHCARE PROFESSIONALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kristie Naines Executive Director | Trustee | 40 | $174,687 |
Kent C New Board Member | Trustee | 1 | $3,150 |
Frederick B Sontag President/board Member | Trustee | 1 | $0 |
Daniel M Ryan Board Member | Trustee | 1 | $0 |
Katherine W Verble Director | Trustee | 1 | $0 |
Clay B Tousey III Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,850,473 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,850,473 |
| Total Program Service Revenue | $0 |
| Investment income | $229 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $143 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,280,455 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,223,770 |
| Pension plan accruals and contributions | $34,704 |
| Other employee benefits | $109,473 |
| Payroll taxes | $90,051 |
| Fees for services: Management | $12,000 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $17,113 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $157,488 |
| Advertising and promotion | $49,453 |
| Office expenses | $4,473 |
| Information technology | $21,252 |
| Royalties | $0 |
| Occupancy | $73,529 |
| Travel | $23,369 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $3,786 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $68,868 |
| Insurance | $7,373 |
| All other expenses | $8,372 |
| Total functional expenses | $1,950,449 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $251,533 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $2,351,722 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $166,124 |
| Other assets | $150,045 |
| Total assets | $2,919,424 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $12,482 |
| Total liabilities | $12,482 |
| Net assets without donor restrictions | $2,826,120 |
| Net assets with donor restrictions | $80,822 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,919,424 |
Grants Recieved
Over the last fiscal year, we have identified 10 grants that The Brain Tumor Network Inc has recieved totaling $1,458,882.
| Awarding Organization | Amount |
|---|---|
The Community Foundation For Northeast Florida Inc Jacksonville, FL PURPOSE: GENERAL OPERATING | $1,199,000 |
The Community Foundation For Northeast Florida Inc Jacksonville, FL PURPOSE: A 1:1 CHALLENGE GRANT FOR YEAR 1 AND YEAR 3 OF THE PEDIATRIC BRAIN TUMOR NAVIGATION PROGRAM. YEAR 1 - $25,000.00 TO COMPLETE AN EXISTING CHALLENGE- PAYMENT ENCLOSEDYEAR 3 - $125,000.00 TO COMPLETE YEAR 3 FUNDING. | $150,000 |
Pj Callahan Foundation Inc New York, NY PURPOSE: GENERAL | $50,000 |
Sontag Foundation Inc Ponte Vedra Beach, FL PURPOSE: FOR THE EXEMPT PURPOSES OF THIS ORGANIZATION | $32,549 |
The Community Foundation For Northeast Florida Inc Jacksonville, FL PURPOSE: GENERAL OPERATING | $10,000 |
David And Lorna Gladstone Foundation Mclean, VA PURPOSE: CARRYING ON CHARITABLE PURPOSES OF EXEMPT ORGANIZATION | $5,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Autauga-Elmore Mr 310 Millbrook, AL | $2,801,188 | $5,921,779 |
The Brain Tumor Network Inc Ponte Vedra Beach, FL | $2,919,424 | $2,280,455 |
Alabama Head Injury Foundation Inc Hoover, AL | $816,830 | $1,314,386 |
Spastic Paraplegia Foundation Inc Fortson, GA | $2,650,188 | $1,153,340 |
Southeastern Brain Tumor Foundation Inc Atlanta, GA | $401,909 | $267,153 |
Dementia Spotlight Foundation Inc Atlanta, GA | $218,143 | $436,565 |
Brain Injury Association Of Georgia Cumming, GA | $159,572 | $0 |
Tony Meduri Tbi Fund Inc Jacksonville, FL | $91,701 | $0 |
Tourette Information Center & Support Of Georgia Inc Atlanta, GA | $63,571 | $0 |
The Brain Donor Project Naples, FL | $326,857 | $0 |
Mote Vascular Foundation Inc Sarasota, FL | $223,246 | $0 |
Brain Injury Association Of Florida Inc Tampa, FL | $182,451 | $0 |