Cure Dystonia Now
- Assets
- $88.0k
- Revenue
- $180.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Melville, NY
- Founding
- 11/2012
- Data as of
- 12/2021
- EIN
- 45-5000038
Organization Overview
Cure Dystonia Now is located in Melville, NY. The organization was established in 2012. According to its NTEE Classification (T22) the organization is classified as: Private Independent Foundations, under the broad grouping of Philanthropy, Voluntarism & Grantmaking Foundations and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Dystonia Now is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cure Dystonia Now generated $180.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.4% each year. All expenses for the organization totaled $527.8k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Cure Dystonia Now has awarded 15 individual grants totaling $698,124. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE FOUNDATION WILL RAISE MONEY AND USE THAT MONEY TO HELP ADVANCE RESEARCH FOR MORE AND/OR IMPROVED TREATMENTS FOR THOSE AFFLICTED WITH DYSTONIA, AND SUPPORT EFFORTS TO CURE THE DISORDER. IT WILL ALSO HELP SUPPORT THE NEEDS AND WELL-BEING OF AFFECTED INDIVIDUALS AND FAMILIES. THE FOUNDATION WILL LIKELY TEAM UP WITH AND SUPPORT OTHER DYSTONIA CHARITIES, SUCH AS TYLER'S HOPE AND THE DYSTONIA MEDICAL RESERACH FOUNDATION IN ITS EFFORTS TO ADVANCE RESEARCH FOR MORE AND/OR IMPROVED TREATMENTS AND ULTIMATELY A CURE. AMONG OTHER THINGS, THE FOUNDATION WILL LIKELY FUND INDIVIDUAL DRUG STUDIES IN THIS REGARD.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE FOUNDATION IS PRESENTLY WORKING WITH SEVERAL OF THE PREEMINENT SCIENTISTS IN THE FIELD OF DYSTONIA, WHO COMPRISE OUR MEDICAL AND SCIENTIFIC ADVISORY COUNCIL (MSAC). THE MSAC CONDUCTS PEER-REVIEW OF RESEARCH APPLICATIONS, SETS THE DIRECTION OF RESEARCH AND MAKES RECOMMENDATIONS TO THE BOARD FOR FUNDING RESEARCH. THE FOUNDATION ALSO TEAMED UP WITH DYSTONIA MEDICAL RESEARCH FOUNDATION (DMRF) TO PROVIDE GRANTS TO ADVANCE RESEARCH TOWARD IMPROVED DYSTONIA TREATMENT OPTIONS AND ULTIMATELY A CURE. IN 2021, THE FOUNDATION FUNDED THREE GRANTS (1)"GENETIC MODIFIERS OF PENETRANCE IN DYTI DYSTONIA", AND (2) "STRIATAL MICROCIRCUIT DEFECTS IN DYTI DYSTONIA AND (3) DYSTONIA MEDICAL RESEARCH FOUNDATION.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Marc Miller Co-President, Treasurer | OfficerTrustee | 1 | $0 |
Sidney Miller Vice President | OfficerTrustee | 1 | $0 |
Robin Miller Co-President | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $20,598 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $163,343 |
| Noncash contributions included in lines 1a–1f | $4,858 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $183,941 |
| Total Program Service Revenue | $0 |
| Investment income | $35 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$3,264 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $180,712 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $515,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $7,000 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $75 |
| Advertising and promotion | $0 |
| Office expenses | $675 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $3,601 |
| All other expenses | $0 |
| Total functional expenses | $527,842 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $88 |
| Savings and temporary cash investments | $87,960 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $88,048 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $88,048 |
| Total liabilities and net assets/fund balances | $88,048 |
Grants Awarded
Over the last fiscal year, Cure Dystonia Now has awarded $120,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Chicago, IL PURPOSE: PERFORM RESEARCH FOR MORE TREATMENTS AND ULTIMATELY A CURE FOR DYSTONIA. | $70,000 |
Atlanta, GA PURPOSE: PERFORM RESEARCH AND UNDERSTANDING NEURONAL DYSFUNCTION IN DYT1 DYSTONIA USING AN UNBIASED PROTEOMICS APPROACH AND HUMAN INDUCED PLURIPOTENT STEM CELLS. | $50,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Cure Dystonia Now has recieved totaling $500.
| Awarding Organization | Amount |
|---|---|
Bradley Spenser Parlo Charitable Foundation Inc Garden City, NY PURPOSE: GENERAL SUPPORT | $500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
S & G Foundation albany, NY | $1,180,089,159 | $294,936,683 |
Steven & Alexandra Cohen Foundation Inc Stamford, CT | $524,605,658 | $98,007,018 |
Starr Foundation New York, NY | $1,351,331,495 | $187,314,215 |
Robertson Foundation New York, NY | $308,129,047 | $104,540,927 |
William Randolph Hearst Foundation New York, NY | $0 | $92,096,829 |
Foundation For A Just Society New York, NY | $0 | $262,120,919 |
Surdna Foundation Inc New York, NY | $0 | $71,392,126 |
Johnson & Johnson Foundation United States Inc New Brunswick, NJ | $130,108,063 | $92,858,448 |
Carson Fam Charitable Tr New York, NY | $302,357,968 | $144,716,166 |
Blavatnik Family Foundation 2020 New York, NY | $0 | $14,146 |
Henry Luce Foundation Inc New York, NY | $1,226,277,880 | $84,818,070 |
Paul E Singer Foundation New York, NY | $412,018,579 | $19,273,091 |