Cloves Syndrome Community

Organization Overview

Cloves Syndrome Community is located in West Kennebunk, ME. The organization was established in 2011. According to its NTEE Classification (G99) the organization is classified as: Voluntary Health Associations & Medical Disciplines N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cloves Syndrome Community is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 06/2022, Cloves Syndrome Community generated $310.7k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (3.1%) each year. All expenses for the organization totaled $377.2k during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

CLOVES SYNDROME COMMUNITY SUPPORTS, EDUCATES, EMPOWERS AND IMPROVES THE LIVES OF THOSE AFFECTED BY CLOVES SYNDROME.

Describe the Organization's Program Activity:

Part 3 - Line 4a

PROVIDE INFORMATION AND RESOURCES TO EDUCATE OTHERS ABOUT CLOVES SYNDROME; FOSTER AND PROMOTE A SUPPORTIVE COMMUNITY; BUILD AND SUSTAIN A BROAD BASE OF FUNDING SOURCES TO SUPPORT OUR MISSION AND GOALS; UTILIZE INCOMING FUNDS TO PROVIDE FINANCIAL ASSISTANCE TO THOSE IMPACTED BY CLOVES SYNDROME; PARTICIPATE IN AND PROMOTE CLOVES SYNDROME RESEARCH TO ASSIST IN A COMPLETE UNDERSTANDING OF THE DISEASE.


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Board, Officers & Key Employees

Name (title)Compensation
Kristen Davis
Executive Director
$49,671
Ashley Mcnamara
Treasurer
$0
Joe Barclay
Board Member
$0
Sara Robertson
Board Member
$0
Steve Handel
Board Member
$0
Lindsey Godar
Board Member
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$17,284
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$272,715
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$289,999
Total Program Service Revenue$20,707
Investment income $0
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $310,706

Grants Awarded

Over the last fiscal year, Cloves Syndrome Community has awarded $59,408 in support to 2 organizations.

Grant RecipientAmount

UNIVERSITY OF NORTH CAROLINA CHAPEL HILL

Org PageRecipient Profile

Chapel Hill, NC

PURPOSE: 2022 research recipent.

$50,000

WASHINGTON UNIVERSITY ATTN JOE GINDHART

Org PageRecipient Profile

Saint Louis, MO

PURPOSE: 2022 Vascular Anomalies Communication Project

$9,408
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 3 grants that Cloves Syndrome Community has recieved totaling $20,911.

Awarding OrganizationAmount
Mightycause Charitable Foundation

Marianna, FL

PURPOSE: UNRESTRICTED

$16,851
Daly Family Foundation

Miami, FL

PURPOSE: GENERAL OPERATIONS

$3,500
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$560
View Grant Recipient Profile

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