Down Syndrome Association Of Greater St Louis
- Assets
- $1.3m
- Revenue
- $641.8k
- Investments
- $0.0
- Employees
- 11
- Location
- Saint Louis, MO
- Founding
- 07/1977
- Data as of
- 12/2020
- EIN
- 43-1108833
Organization Overview
Down Syndrome Association Of Greater St Louis is located in Saint Louis, MO. The organization was established in 1977. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2020, Down Syndrome Association Of Greater St Louis employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Down Syndrome Association Of Greater St Louis is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2020, Down Syndrome Association Of Greater St Louis generated $641.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (3.1%) each year. All expenses for the organization totaled $600.4k during the year ending 12/2020. As we would expect to see with falling revenues, expenses have declined by (1.6%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
THE DSAGSL SERVES, SUPPORTS, AND CELEBRATES THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES, THROUGH EVERY STAGE OF LIFE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION SUPPORTED INDIVIDUALS AND FAMILIES THROUGH THE FOLLOWING PROGRAMS: NEW PARENT SUPPORT, FIRST BIRTHDAY PROGRAM/CELEBRATION BASKETS, PARENT TO PARENT NETWORK AND MENTOR PROGRAM, AGES AND STAGES BOOK PROGRAM, VOLUNTEER STAFFING FOR DOWN SYNDROME CENTER AT CHILDREN'S HOSPITAL, REGIONAL COMMUNITY GROUPS, FAMILY EVENTS (FAMILY PICNICS, HOLIDAY PARTY), SHARING OUR STRATEGIES RESOURCE NETWORK, INFORMATION AND REFERRAL, RESOURCE LIBRARY, HEALTH PROFESSIONAL OUTREACH, SUPPORT CAREGIVERS OF AGING ADULTS WITH DOWN SYNDROME, AND EDUCATIONAL ADVOCACY AND SUPPORT.
THE ORGANIZATION PROVIDED THE FOLLOWING EDUCATIONAL PROGRAMS: SMALL STEPS THERAPY CAMP AND THERAPEUTIC PLAYGROUPS, DSAGL ROCKS MUSIC PROGRAM, CONFERENCES, SEMINARS & WORKSHOPS, STEPS TO INDEPENDENCE CLASSES FOR ADULTS WITH DOWN SYNDROME, DOWN SYNDROME EDUCATION SPECIALISTS PROGRAM, READY TO WORK EMPLOYMENT INITIATIVE, COMMUNITY EDUCATION AND OUTREACH, AND POP UP SNACK SHOP SOCIAL ENTERPRISE AND JOB TRAINING PROGRAM.
THE ORGANIZATION PROVIDED THE FOLLOWING PUBLIC AWARENESS AND ADVOCACY PROGRAMS: STEP UP FOR DOWN SYNDROME (SUDS) AWARENESS WALK, WALK IN THE PARK, RUN FOR 21, WORLD DOWN SYNDROME DAY, DOWN SYNDROME AWARENESS MONTH, FRIENDS FOR ALL SEASONS CALENDAR, AWARENESS BRACELETS AND APPAREL, SOCIAL MEDIA CAMPAIGNS, E-COMMUNICATIONS, PUBLICATIONS, AND LEGISLATIVE ADVOCACY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Greg Szczepan President | OfficerTrustee | 0.5 | $0 |
Matthew Kane Secretary | OfficerTrustee | 0.5 | $0 |
Andy Conover Treasurer | OfficerTrustee | 0.5 | $0 |
Michelle Abounader Director | Trustee | 0.5 | $0 |
Robert Berger Director | Trustee | 0.5 | $0 |
Donna Calamia Director | Trustee | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $237,774 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $237,774 |
| Total Program Service Revenue | $40,780 |
| Investment income | $40,004 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $312,347 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $641,765 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $310,739 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $4,633 |
| Payroll taxes | $25,014 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $39,246 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $41,756 |
| Travel | $3,610 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $4,040 |
| Insurance | $61,997 |
| All other expenses | $28,416 |
| Total functional expenses | $600,399 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $109,773 |
| Savings and temporary cash investments | $112,897 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $33,973 |
| Net Land, buildings, and equipment | $14,439 |
| Investments—publicly traded securities | $1,014,769 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $2,446 |
| Total assets | $1,288,297 |
| Accounts payable and accrued expenses | $6,725 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $11,127 |
| Total liabilities | $17,852 |
| Net assets without donor restrictions | $1,263,445 |
| Net assets with donor restrictions | $7,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,288,297 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Down Syndrome Association Of Greater St Louis has recieved totaling $8,000.
| Awarding Organization | Amount |
|---|---|
Global Down Syndrome Foundation Denver, CO PURPOSE: EDUCATION | $8,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Harwood Center Inc Memphis, TN | $4,064,983 | $2,916,893 |
Down Syndrome Association Of Greater St Louis Saint Louis, MO | $1,288,297 | $641,765 |
Down Syndrome Association Of Middle Tennessee Hermitage, TN | $522,901 | $544,904 |
Down Syndrome Association Of Central Oklahoma Oklahoma City, OK | $789,516 | $227,328 |
Mary Lou Downs Foundation Chicago, IL | $2,193,989 | $97,247 |
National Association For Down Syndrome Park Ridge, IL | $237,030 | $261,302 |
Down Syndrome Association Of Central Kentucky Inc Lexington, KY | $327,788 | $253,838 |
Downside Up Hixson, TN | $15,712 | $0 |
Angels In Disguise Inc Louisville, KY | $54,472 | $59,513 |
Down Country Taylor, MO | $42,792 | $38,239 |
Down Syndrome Association Of Memphis Cordova, TN | $382,137 | $142,961 |
Down Syndrome Association For Families Lincoln, NE | $193,566 | $0 |