Association For Glycogen Storage Disease
- Assets
- $398.7k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Waterloo, IA
- Founding
- 02/1980
- Data as of
- 12/2023
- EIN
- 42-1130450
Organization Overview
Association For Glycogen Storage Disease is located in Waterloo, IA. The organization was established in 1980. According to its NTEE Classification (G70) the organization is classified as: Digestive Diseases & Disorders, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Association For Glycogen Storage Disease is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Association For Glycogen Storage Disease generated $129.6k in total revenue. The organization has seen a slow decline revenue. Over the past 5 years, revenues have fallen by an average of (0.9%) each year. All expenses for the organization totaled $160.9k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2023
Describe the Organization's Program Activity:
Part 3
TO PROVIDE FAMILY SUPPORT AND PROMOTE AWARENESS OF GLYCOGEN STORAGE DISEASE BY PROVIDING CONFERENCES AND SCHOLARSHIPS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kim Burney President | 10 | $0 | |
Rebecca Lichucki Vice President | 18 | $0 | |
Heather Edwards Treasurer | 5 | $0 | |
Brian Pawlik Chairman | 5 | $0 | |
Irene Helley Secretary | 5 | $0 | |
Katie Ward Director | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $127,967 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $1,616 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $129,571 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $1,539 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $159,332 |
| Total expenses | $160,871 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $398,685 |
| Other assets | $0 |
| Total assets | $398,685 |
| Total liabilities | $259 |
| Net assets or fund balances | $398,426 |
Peer Organizations
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|---|---|---|
American Society For Gastrointestinal Endoscopy Downers Grove, IL | $38,329,488 | $18,178,927 |
Certification Board For Diabetes Care And Educators Schaumburg, IL | $5,642,594 | $1,582,837 |
Wound Ostomy & Continence Nursing Certification Board Milwaukee, WI | $2,334,098 | $1,563,820 |
Pediatric Endocrinology Nursing Society Chicago, IL | $2,297,998 | $677,627 |
American Board Of Certification For Gastroenterology Nurses Inc Chicago, IL | $795,751 | $416,261 |
Society For The Study Of Ingestive Behavior Inc Glenview, IL | $396,902 | $239,258 |
Association For Glycogen Storage Disease Waterloo, IA | $398,685 | $0 |
Raising Our Celiac Kids-Twin Cities Chapter Inc Elk River, MN | $61,174 | $0 |
Gh Foundation Chicago, IL | $977 | $15,558 |
Women In Endocrinology Inc Chicago, IL | $201,633 | $0 |