Hairy Cell Leukemia Foundation
- Assets
- $2.3m
- Revenue
- $2.4m
- Investments
- $0.0
- Employees
- 1
- Location
- New York, NY
- Founding
- 09/1985
- Data as of
- 12/2021
- EIN
- 36-3327001
Organization Overview
Hairy Cell Leukemia Foundation is located in New York, NY. The organization was established in 1985. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hairy Cell Leukemia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hairy Cell Leukemia Foundation generated $2.4m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 18.5% each year . All expenses for the organization totaled $716.7k during the year ending 12/2021. While expenses have increased by 6.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Hairy Cell Leukemia Foundation has awarded 22 individual grants totaling $2,405,226. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
DEDICATED TO IMPROVING OUTCOMES FOR PATIENTS BY ADVANCING RESEARCH INTO THE CAUSES AND TREATMENT OF HAIRY CELL LEUKEMIA, AS WELL AS EDUCATIONAL RESOURCES AND COMFORT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS TO THE OHIO STATE UNIVERSITY FOR REGISTRY IMPLEMENTATION AND MAINTENANCE, DATA ENTRY, TRAINING AND SUPPORT OF NEW SITES, AND PROTOCOL REVIEW AND ASSISTANCE; AND GRANTS TO LOCAL SITES FOR REGISTRY IMPLEMENTATION AND DATA ENTRY. FACILITATION OF SCIENTIFIC REVIEW AND APPROVAL OF REQUESTS FOR REGISTRY DATA. ADMINISTRATIVE AND TECHNICAL SUPPORT IN PREPARING AND SUBMITTING FOR PUBLICATION MANUSCRIPTS RELATED TO REGISTRY DATA USE.
GRANT AWARDS TO INVESTIGATORS PURSUING RESEARCH IN HAIRY CELL LEUKEMIA. ADMINISTRATIVE AND TECHNICAL SUPPORT TO INVESTIGATORS. EXTERNAL COMMUNICATION OF RESEARCH AND NEW PUBLICATIONS.
ANNUAL CONFERENCE EACH FALL FOR DOCTORS AND WEBINARS, AS WELL AS EDUCATIONAL WEBINARS AND FORUMS FOR PATIENTS THROUGHOUT THE YEAR. FACILITATION OF REGIONAL SUPPORT NETWORKS FOR PATIENTS. RESPONDING TO PATIENT INQUIRIES AND REFERRALS TO HCL CENTERS OF EXCELLENCE. FACILITATION OF SCIENTIFIC ADVISORY GROUPS AND PEER-TO-PEER DOCTOR SUPPORT. ADMINISTRATIVE, EDITORIAL AND TECHNICAL SUPPORT IN THE PREPARATION AND SUBMISSION OF RELEVANT MANUSCRIPTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Anna Lambertson Executive Director | 40 | $122,000 | |
Kenneth Jensen Treasurer | OfficerTrustee | 12 | $0 |
Marc Stadtmauer President | OfficerTrustee | 3 | $0 |
Brian Friedman Vice President | OfficerTrustee | 1 | $0 |
Michael Margolin MD Vice President | OfficerTrustee | 2 | $0 |
Adi Weber Secretary | OfficerTrustee | 1.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,371,903 |
| Noncash contributions included in lines 1a–1f | $255,462 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,371,903 |
| Total Program Service Revenue | $0 |
| Investment income | $533 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,372,436 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $358,371 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $170,214 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $130,675 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $10,948 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $14,430 |
| Fees for services: Accounting | $5,514 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $121 |
| Office expenses | $5,907 |
| Information technology | $3,700 |
| Royalties | $0 |
| Occupancy | $8,795 |
| Travel | $799 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,718 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,485 |
| All other expenses | $0 |
| Total functional expenses | $716,677 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $2,260,828 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,260,828 |
| Accounts payable and accrued expenses | $2,883 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $2,883 |
| Net assets without donor restrictions | $358,298 |
| Net assets with donor restrictions | $1,899,647 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,260,828 |
Grants Awarded
Over the last fiscal year, Hairy Cell Leukemia Foundation has awarded $437,088 in support to 5 organizations.
| Grant Recipient | Amount |
|---|---|
Rye Brook, NY PURPOSE: Research Grant | $156,250 |
New York, NY PURPOSE: Research Grant | $156,250 |
Rochester, NY PURPOSE: Research Grant | $50,000 |
Columbus, OH PURPOSE: Research grant | $43,338 |
Cleveland, OH PURPOSE: Research grant | $31,250 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Hairy Cell Leukemia Foundation has recieved totaling $1,355,570.
| Awarding Organization | Amount |
|---|---|
Fidelity Investments Charitable Gift Fund Boston, MA PURPOSE: For grant recipient's exempt purposes | $1,022,350 |
Sass Foundation For Medical Research Inc Roslyn, NY PURPOSE: RESEARCH AND EDUCATION - TO FUND RESEARCH PROJECTS TO COMBAT CANCER AND OTHER RELATED DISEASES | $289,196 |
Jewish Community Foundation Of Greater Metrowest Nj Whippany, NJ PURPOSE: General Charitable Purposes | $30,250 |
Network For Good Inc Washington, DC PURPOSE: Unrestricted | $6,690 |
Network For Good Inc Washington, DC PURPOSE: Unrestricted | $6,690 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $394 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Dana Farber Mass General Brigham Cancer Care Inc Boston, MA | $42,647,489 | $95,186,368 |
Ludwig Institute For Cancer Research New York, NY | $25,811,385 | $89,264,708 |
Institute For Cancer Research Philadelphia, PA | $148,137,241 | $82,576,402 |
Wistar Institute Of Anatomy & Biology Philadelphia, PA | $414,460,000 | $115,831,000 |
American Association For Cancer Research Philadelphia, PA | $261,131,206 | $103,171,549 |
Nsabp Foundation Inc Pittsburgh, PA | $90,333,934 | $55,869,172 |
Cancer Research Institute Inc New York, NY | $130,438,312 | $33,675,150 |
Centre County Cancer Center State College, PA | $6,772,389 | $27,589,392 |
Nrg Oncology Foundation Inc Philadelphia, PA | $13,392,636 | $27,206,954 |
Lake Champlain Cancer Research Org Inc Essex Jct, VT | $0 | $292,033 |
Addgene Inc Watertown, MA | $22,116,271 | $23,985,910 |
Count Me In Inc Cambridge, MA | $7,331,909 | $8,017,841 |