The Parent Project For Muscular Dystrophy Research Inc
- Assets
- $10.2m
- Revenue
- $10.9m
- Investments
- $250.0k
- Employees
- 19
- Location
- Washington, DC
- Founding
- 06/1994
- Data as of
- 12/2021
- EIN
- 31-1405490
Organization Overview
The Parent Project For Muscular Dystrophy Research Inc is located in Washington, DC. The organization was established in 1994. According to its NTEE Classification (P20) the organization is classified as: Human Service Organizations, under the broad grouping of Human Services and related organizations. As of 12/2021, Parent Project For Muscular Dystrophy Research Inc employed 19 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Parent Project For Muscular Dystrophy Research Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Parent Project For Muscular Dystrophy Research Inc generated $10.9m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 3.3% each year. All expenses for the organization totaled $7.8m during the year ending 12/2021. While expenses have increased by 0.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Parent Project For Muscular Dystrophy Research Inc has awarded 258 individual grants totaling $21,158,995. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
END DUCHENNE MUSCULAR DYSTROPHY THROUGH RESEARCH, ADVOCACY, EDUCATION, & OPTIMAL MEDICAL CARE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCHPPMD'S RESEARCH PROGRAM IDENTIFIES AND AGGRESSIVELY FUNDS THE MOST PROMISING NEAR AND LONG-TERM DUCHENNE RESEARCH ACROSS NUMEROUS THERAPEUTIC STRATEGIES; STIMULATES NEW RESEARCH TO ENSURE THAT THE THERAPEUTIC PIPELINE IS RICH WITH OPPORTUNITY; FACILITATES PRE-COMPETITIVE INDUSTRY INTERACTIONS THROUGH THE DUCHENNE DRUG DEVELOPMENT ROUNDTABLE TO ENHANCE AND HARMONIZE THE CLINICAL TRIAL LANDSCAPE; AND SUPPORTS MULTI-STAKEHOLDER DATA MODELLING CONSORTIA TO ACCELERATE DRUG DEVELOPMENT TIMELINES. IN ADDITION TO SIGNIFICANT PRE-CLINICAL AND ACADEMIC RESEARCH FUNDING, PPMD MAKES INVESTMENTS IN EARLY-STAGE BIOPHARMACEUTICAL COMPANIES TO CATALYZE DEVELOPMENT OF NOVEL THERAPIES TO TREAT DUCHENNE AND BECKER. THE DUCHENNE REGISTRYTHE DUCHENNE REGISTRY IS A PATIENT-REPORTED REGISTRY FOR INDIVIDUALS WITH DUCHENNE AND BECKER MUSCULAR DYSTROPHY AND CARRIER FEMALES. ESTABLISHED BY PPMD IN 2007, THE REGISTRY WAS CREATED TO BRIDGE THE INFORMATION GAP BETWEEN CLINICIANS, RESEARCHERS, AND THE PATIENT COMMUNITY, THEREBY ADDRESSING MEDICAL CARE NEEDS AND ACCELERATING THE PACE OF THERAPEUTIC ADVANCEMENTS. OVER 5,000 FAMILIES ACROSS THE GLOBE HAVE EMBRACED THEIR ROLE AS CITIZEN SCIENTISTS AND HAVE CONTRIBUTED TO THE LARGEST PATIENT-REPORTED DATA SET FOR DUCHENNE. CAREPPMD'S CARE PROGRAM STRIVES TO ENSURE THAT PEOPLE LIVING WITH DUCHENNE ARE LIVING LONGER, STRONGER LIVES, BY HELPING PROVIDE ACCESS TO EXPERT HEALTHCARE PROVIDERS, A COMPREHENSIVE TEAM OF SUB-SPECIALISTS, AND APPROVED TREATMENTS. PPMD IDENTIFIES GAPS IN CARE FOR PEOPLE WITH DUCHENNE THROUGHOUT THE LIFESPAN AND COLLABORATES WITH HEALTH CARE PROFESSIONALS ACROSS THE GLOBE TO IMPROVE HEALTH OUTCOMES FOR ALL DUCHENNE PATIENTS. PPMD'S CERTIFIED DUCHENNE CARE CENTER PROGRAM (CDCC) HELPS TO ENSURE THAT CENTERS COMPLY WITH THE STANDARDS OF CARE AND SERVICES THAT HAVE BEEN ESTABLISHED IN THE DUCHENNE CARE GUIDELINES. ALL CERTIFIED DUCHENNE CARE CENTERS HAVE MET THE REQUIREMENTS FOR, AND AGREE TO PROVIDE, STANDARDIZED CARE AND SERVICES.
EDUCATIONPPMD'S EDUCATION INITIATIVES INCREASE AWARENESS AND UNDERSTANDING OF THE DISEASE PROGRESSION AND THE COMPONENTS OF MULTIDISCIPLINARY COMPREHENSIVE CARE NECESSARY TO OPTIMIZE QUALITY AND QUANTITY OF LIFE THROUGHOUT THE LIFESPAN. PPMD PARTNERS WITH EXPERTS IN DUCHENNE TO DEVELOP UP-TO-DATE INFORMATIONAL RESOURCES REGARDING TREATMENT AND CARE THAT WE THEN SHARE BROADLY. PPMD COLLABORATES WITH NATIONAL AND INTERNATIONAL ORGANIZATIONS TO DEVELOP AND DISSEMINATE EDUCATIONAL RESOURCES APPROPRIATE FOR THE GLOBAL DUCHENNE COMMUNITY.
ADVOCACYPPMD'S ADVOCACY EFFORTS ARE FOCUSED ON ADVANCING CARE AND TREATMENTS FOR DUCHENNE BY LEVERAGING FEDERAL RESOURCES, BUILDING PARTNERSHIPS, AND ADVANCING REGULATORY PROCEDURES AND INFRASTRUCTURE. WE EMPOWER ADVOCATES WITH THE TOOLS AND INFORMATION TO ENGAGE WITH CONGRESSIONAL REPRESENTATIVES TO FOSTER DUCHENNE CHAMPIONS WITHIN CONGRESS AND TO SUPPORT LEGISLATION AND REGULATORY POLICIES, ENSURING THAT DUCHENNE PRIORITIES ARE REFLECTED ACROSS ALL GOVERNMENT AGENCIES.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Patricia A Furlong Founding CEO & President | Officer | 40 | $223,857 |
Kaylan Moitoso Chief Business Officer | 40 | $190,161 | |
Ryan Fischer Chief Advocacy Officer | 40 | $172,041 | |
Rachel Schrader Vice President, Clinical Care And Education | 40 | $147,903 | |
Ann Martin Vp, Comm Research And Genetic Services | 40 | $141,300 | |
Kimberly Galberaith Creative Director | 40 | $129,280 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
John R Dudley Productions Llc A/v And Production Services | 12/30/21 | $206,116 |
Prometheus Research Llc Database/ Information Technology Service | 12/30/21 | $204,428 |
United Health Care Health Insurance | 12/30/21 | $126,145 |
Your Part-time Controller Financial Consulting Services | 12/30/21 | $186,960 |
Faegre Drinker Biddie & Reath Llp Legal And Regulatory Consulting | 12/30/21 | $185,068 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $2,050,953 |
| Related organizations | $0 |
| Government grants | $447,660 |
| All other contributions, gifts, grants, and similar amounts not included above | $7,956,115 |
| Noncash contributions included in lines 1a–1f | $720,702 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $10,454,728 |
| Total Program Service Revenue | $485,989 |
| Investment income | $49,538 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $4,068 |
| Net Income from Fundraising Events | -$138,175 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $10,856,558 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,388,081 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $121,106 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $226,837 |
| Compensation of current officers, directors, key employees. | $11,342 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,755,419 |
| Pension plan accruals and contributions | $88,743 |
| Other employee benefits | $133,724 |
| Payroll taxes | $145,990 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $40,109 |
| Fees for services: Accounting | $17,595 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,198,694 |
| Advertising and promotion | $0 |
| Office expenses | $126,360 |
| Information technology | $873,281 |
| Royalties | $0 |
| Occupancy | $127,211 |
| Travel | $104,093 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $154,938 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $11,245 |
| Insurance | $24,095 |
| All other expenses | $46,222 |
| Total functional expenses | $7,843,364 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,257,144 |
| Savings and temporary cash investments | $5,523,580 |
| Pledges and grants receivable | $830,789 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $52,041 |
| Prepaid expenses and deferred charges | $217,861 |
| Net Land, buildings, and equipment | $27,206 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $250,000 |
| Investments—program-related | $1,027,774 |
| Intangible assets | $0 |
| Other assets | $17,465 |
| Total assets | $10,203,860 |
| Accounts payable and accrued expenses | $396,783 |
| Grants payable | $531,753 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $575,852 |
| Total liabilities | $1,504,388 |
| Net assets without donor restrictions | $7,899,231 |
| Net assets with donor restrictions | $800,241 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $10,203,860 |
Grants Awarded
Over the last fiscal year, The Parent Project For Muscular Dystrophy Research Inc has awarded $2,239,078 in support to 22 organizations.
| Grant Recipient | Amount |
|---|---|
Menands, NY PURPOSE: RESEARCH- NYS NEWBORN SCREENING PILOT | $450,000 |
Gainesville, FL PURPOSE: RESEARCH PROGRAM- CARIDIAC INITIATIVE AND BIOBANK SUPPORT | $368,927 |
Gainesville, FL PURPOSE: RESEARCH PROGRAM- WELLSTONE SUPPLEMENT | $263,693 |
Albany, NY PURPOSE: RESEARCH PROGRAM- GENE THERAPY INITIATIVE | $226,450 |
Columbus, OH PURPOSE: RESEARCH PROGRAM- CARDIAC INITIATIVE (GENE EDITING TO CORRECT HEART FUNCTION) | $121,644 |
Evanston, IL PURPOSE: RESEARCH PROGRAM- CARDIAC INITIATIVE | $120,000 |
Grants Recieved
Over the last fiscal year, we have identified 23 grants that The Parent Project For Muscular Dystrophy Research Inc has recieved totaling $669,895.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HUMAN SERVICES | $271,959 |
Smidt Fam Foundation Newbury Park, CA PURPOSE: IN FURTHERANCE OF SECTION 501(C)(3) CHARITABLE PURPOSE. | $100,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $94,756 |
Foundation To Eradicate Duchenne Inc Alexandria, VA PURPOSE: FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY | $50,000 |
Columbus Foundation Columbus, OH PURPOSE: HEALTH | $36,000 |
Team Joseph Inc West Bloomfield, MI PURPOSE: RESEARCH PROTEIN MAPPING | $25,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Center For Global Development Washington, DC | $65,777,264 | $14,319,773 |
Frontstream Global Fund Alexandria, VA | $871,140 | $19,414,740 |
Corus International Inc Baltimore, MD | $10,612,047 | $34,455 |
Commonwealth Catholic Charities Richmond, VA | $9,806,748 | $17,802,660 |
Highland School Inc Warrenton, VA | $41,730,791 | $16,433,775 |
Cornerstones Inc Reston, VA | $6,868,044 | $15,431,284 |
Planning Council Norfolk, VA | $2,554,279 | $14,330,288 |
International Association Of Better Business Bureaus Inc Arlington, VA | $17,726,579 | $13,292,143 |
Marine Corps Heritage Foundation Triangle, VA | $123,200,023 | $11,840,546 |
Washington County Community Action Council Inc Hagerstown, MD | $6,621,618 | $12,215,163 |
Union Mission Norfolk, VA | $19,076,349 | $10,467,458 |
Harford Community Action Agency Inc Edgewood, MD | $1,673,036 | $9,657,215 |