Macular Degeneration Association
- Assets
- $5.9m
- Revenue
- $3.7m
- Investments
- $0.0
- Employees
- 7
- Location
- Sarasota, FL
- Founding
- 08/2010
- Data as of
- 12/2023
- EIN
- 27-3025707
Organization Overview
Macular Degeneration Association is located in Sarasota, FL. The organization was established in 2010. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2023, Macular Degeneration Association employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Macular Degeneration Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Macular Degeneration Association generated $3.7m in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 15.1% each year . All expenses for the organization totaled $2.4m during the year ending 12/2023. While expenses have increased by 10.9% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE MACULAR DEGENERATION ASSOCIATION (MDA)IS TO FIND A CURE FOR MACULAR DEGENERATION. WE DISSEMINATE RESEARCH FINDINGS THAT HAVE THE POTENTIAL TO PRODUCE NEW TREATMENTS AND PRESENT EDUCATIONAL PROGRAMS TO HELP THOSE AFFECTED BY THIS DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE MACULAR DEGENERATION ASSOCIATION (MDA) CREATED INFORMATIVE AND NECESSARY EDUCATIONAL PROGRAMS FOR THOSE AFFECTED BY MACULAR DEGENERATION AND DIABETIC MACULAR EDEMA. THESE PROGRAMS NOT ONLY PROVIDE INFORMATION FOR THE PERSON WHO HAS BEEN AFFECTED BY EITHER OF THESE EYE DISEASES BUT WILL BRING PRECAUTIONARY MEASURES TO THEIR FAMILY MEMBERS AND HELPFUL INFORMATION FOR THEIR CAREGIVERS. ALL PROGRAMS FEATURE EXPERTS IN THE FIELD OF RETINA, PROVIDING INFORMATION ABOUT RISK FACTORS, GENETIC PREDISPOSITION, PROPER DIAGNOSIS, NEW TREATMENT OPTIONS, RESEARCH INFORMATION, CLINICAL TRIALS AND NEW DRUG ADVANCES. PARTICIPANTS ARE GIVEN A CHANCE TO INTERACT WITH THE DOCTOR AND ASK QUESTIONS. THEY ARE ALSO ABLE TO SHARE THEIR CHALLENGES AND SUCCESSES WITH THE OTHER ATTENDEES.
THE MACULAR DEGENERATION ASSOCIATION PRODUCES NEWSLETTERS QUARTERLY. THE INFORMATION PROVIDED IS FOR THOSE WHO HAVE AGE-RELATED MACULAR DEGENERATION, DIABETIC EYE DISEASE, GLAUCOMA AND CATARACTS. THE NEWSLETTER PROVIDES EDUCATIONAL INFORMATION, NEW RESEARCH, NEW DRUG THERAPIES, CLINICAL TRIALS AND TREATMENTS. THE NEWSLETTERS GO OUT TO 48,600 DOCTORS, PATIENTS, FAMILIES AND CAREGIVERS. BROCHURES WERE DESIGNED AND PROVIDED TO DOCTORS TO HELP THEIR PATIENTS NAVIGATE MACULAR DEGENERATION AND FIND RESOURCES THAT CAN HELP. WE HAVE A VERY ROBUST SOCIAL MEDIA FOLLOWING INCLUDING 17,111 FOLLOWERS ON FACEBOOK, 6,602 ON TWITTER, 4,800 ON LINKED IN AND 361 ON PINTEREST.
MACULAR DEGENERATION ASSOCIATION HAS CREATED A STATE-OF-THE-ART WEBSITE TO PROVIDE AN EXTENSIVE NUMBER OF RESOURCES AND INFORMATION TO HELP THOSE AFFECTED BY MACULAR DEGENERATION AND ADDITIONAL DISEASES THAT CAN AFFECT MACULAR DEGENERATION. THIS WEBSITE INCLUDES EDUCATIONAL VIDEOS THAT ARE PRODUCED FOR PATIENTS, FAMILY MEMBERS AND CAREGIVERS. THE WEBSITE IS ADA-COMPLIANT AND IS ACCESSIBLE TO PEOPLE WITH VISION DISABILITIES. THERE IS ALSO A FEATURE FOR THOSE WHO SPEAK SPANISH TO CONVERT ENGLISH TO SPANISH. WE CONTINUE TO INCLUDE UP-TO-DATE INFORMATION ON ALL EYE DISEASES, NEW TREATMENT OPTIONS, RESEARCH INFORMATION, CLINICAL TRIALS AND NEW DRUG ADVANCES. OUR USER-FRIENDLY WEBSITE PROVIDES THE USER WITH FRIENDLY NAVIGATION, ACCESSIBILITY TOOLS AND INFORMATION FOR PATIENTS, PROFESSIONALS, CAREGIVERS AND FAMILIES. THIS WEBSITE HAS AN AVERAGE OF 600,000 HITS ANNUALLY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lawrence Hoffheimer Chairman Of The Board | OfficerTrustee | 25 | $178,890 |
Linda Patterson Treasurer | OfficerTrustee | 20 | $102,500 |
Donna Auger Director | Trustee | 40 | $144,000 |
Dustin Tenney Employee | 25 | $81,146 | |
Amy Carroll Secretary | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $3,224,423 |
| Noncash contributions included in lines 1a–1f | $109,595 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,224,423 |
| Total Program Service Revenue | $0 |
| Investment income | $137,878 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $336,002 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,698,303 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $425,390 |
| Compensation of current officers, directors, key employees. | $140,695 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $193,008 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $989 |
| Payroll taxes | $48,916 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $7,850 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $30,000 |
| Fees for services: Investment Management | $35,592 |
| Fees for services: Other | $560,282 |
| Advertising and promotion | $52,159 |
| Office expenses | $40,014 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $93,844 |
| Travel | $51,485 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $174 |
| Insurance | $12,101 |
| All other expenses | $23,282 |
| Total functional expenses | $2,434,742 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $742,567 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $15,324 |
| Net Land, buildings, and equipment | $3,298 |
| Investments—publicly traded securities | $5,147,426 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $5,908,615 |
| Accounts payable and accrued expenses | $174,203 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $174,203 |
| Net assets without donor restrictions | $5,734,412 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,908,615 |