Macular Degeneration Association
- Assets
- $4.7m
- Revenue
- $2.6m
- Investments
- $0.0
- Employees
- 7
- Location
- Sarasota, FL
- Founding
- 08/2010
- Data as of
- 12/2021
- EIN
- 27-3025707
Organization Overview
Macular Degeneration Association is located in Sarasota, FL. The organization was established in 2010. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2021, Macular Degeneration Association employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Macular Degeneration Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Macular Degeneration Association generated $2.6m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 13.8% each year . All expenses for the organization totaled $1.8m during the year ending 12/2021. While expenses have increased by 9.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF MACULAR DEGENERATION ASSOCIATION IS TO FIND A CURE FOR MACULAR DEGENERATION. WE DISSEMINATE RESEARCH FINDINGS AND PERFORM EDUCATIONAL PROGRAMS TO HELP THOSE AFFECTED BY THIS DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
MACULAR DEGENERATION ASSOCIATION HAS CREATED A STATE OF THE ART WEBSITE TO PROVIDE AN EXTENSIVE NUMBER OF RESOURCES AND INFORMATION TO HELP THOSE AFFECTED BY MACULAR DEGENERATION AND ADDITIONAL DISEASES THAT CAN AFFECT MACULAR DEGENERATION. THE WEBSITE INCLUDES EDUCATIONAL VIDEOS AND BLOGS THAT ARE PODUCED FOR PATIENTS, FAMILY MEMBERS AND CAREGIVERS. THE WEBSITE IS ADA COMPLIANT AND IS ACCESSIBLE TO PEOPLE WITH VISION DISABILITIES. THERE IS ALSO A FEATURE FOR THOSE THAT SPEAK SAPNISH TO CONVERT ENGLISH TO SPANISH. WE CONTINUE TO INCLUDE UP TO DATE INFORMATION ON ALL EYE DISEASES, NEW TREATMENTS AND RESEARCH. OUR USER FRIENDLY WEBSITE PROVIDES THE USER WITH FRIENDLY NAVIGATION, ACCESSIBILITY TOOLS AND INFORMATION FOR PATIENTS, PROFESSIONALS, CAREGIVERS AND FAMILIES. THIS WEBSITE HAS AN AVERAGE 669,000 HITS ANNUALLY.
THE MACULAR DEGENERATION ASSOCIATION HAS CREATED EDUCATIONAL IN-PERSON PROGRAMS AND VIRTUAL EDUCATIONAL PROGRAMS FOR THOSE THAT CANNOT COME TO A LIVE PROGRAM. THESE PROGRAMS NOT ONLY PROVIDE INFORMATION FOR THE PERSON THAT HAS BEEN AFFECTED BY MACULAR DEGENERATION OR DIABETIC MACULAR EDEMA BUT WILL BRING PRECAUTIONARY MEASURES TO THEIR FAMILY MEMBERS AND HELPFUL INFORMATION FOR CAREGIVERS. ALL PROGRAMS FEATURE EXPERTS IN THE FIELD OF RETINA OR OPTOMETRY, PROVIDING INFORMATION ABOUT RISK FACTORS, GENETIC PREDISPOSITION, PROPER DIAGNOSIS, NEW TREATMENT OPTIONS, RESEARCH INFORMATION, CLINICAL TRIALS AND NEW DRUG ADVANCES. PARTICIPANTS ARE GIVEN A CHANCE TO INTERACT WITH THE DOCTOR AND ASK QUESTIONS.
THE MACULAR DEGENERATION ASSOCIATION PRODUCES NEWSLETTERS QUARTERLY. THE INFORMATION PROVIDED IS FOR THOSE THAT HAVE AGE-RELATED MACULAR DEGENERATION, DIABETIC EYE DISEASE, GLAUCOMA AND CATARACTS. THE NEWSLETTER PROVIDES EDUCATIONAL INFORMATION, NEW RESEARCH, NEW DRUG THERAPIES AND CLINICAL TRIALS AND TREATMENTS. THE NEWSLETTERS GO OUT TO 50,000 DOCTORS, PATIENTS, FAMILIES AND CAREGIVERS. BROCHURES WERE DESIGNED AND PROVIDED TO DOCTORS TO HELP THEIR PATIENTS NAVIGATE MACULAR DEGENERATION AND FIND RESOURCES THAT CAN HELP. WE HAVE A VERY ROBUST SOCIAL MEDIA FOLLOWING INCLUDING 17,081 FOLLOWERS ON FACEBOOK, 7,637 ON TWITTER, 591 ON LINKED IN AND 610 ON PINTEREST.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Donna Auger Director | Trustee | 40 | $144,000 |
Lawrence Hoffheimer President | OfficerTrustee | 20 | $100,000 |
Dustin Tenney Employee | 0 | $71,300 | |
Linda Patterson Treasurer | OfficerTrustee | 20 | $70,000 |
Amy Carroll Secretary | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $135,175 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,385,687 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,520,862 |
| Total Program Service Revenue | $0 |
| Investment income | $61,390 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$183 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,582,069 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $313,400 |
| Compensation of current officers, directors, key employees. | $119,400 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $175,645 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $38,513 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,575 |
| Fees for services: Accounting | $7,697 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $49,630 |
| Fees for services: Investment Management | $33,669 |
| Fees for services: Other | $232,796 |
| Advertising and promotion | $6,729 |
| Office expenses | $31,583 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $71,115 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,082 |
| Insurance | $0 |
| All other expenses | $24,867 |
| Total functional expenses | $1,775,123 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $719,480 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $10,210 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,957 |
| Net Land, buildings, and equipment | $6,255 |
| Investments—publicly traded securities | $3,972,786 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $4,711,688 |
| Accounts payable and accrued expenses | $123,209 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $123,209 |
| Net assets without donor restrictions | $4,588,479 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,711,688 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Macular Degeneration Association has recieved totaling $5,025.
| Awarding Organization | Amount |
|---|---|
Edward W Smith Jr Foundation Port St Lucie, FL PURPOSE: UNRESTRICTED USE BY CHARITY | $5,000 |
Dale W & Bonita J Van Voorhis Fam Foundation Hiram, OH PURPOSE: GENERAL PURPOSE | $25 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Dolphins Cycling Challenge Inc Miami Gardens, FL | $2,087,830 | $8,010,731 |
Florida Breast Cancer Coalition Research Foundation North Miami, FL | $2,465,168 | $2,293,769 |
Macular Degeneration Association Sarasota, FL | $4,711,688 | $2,582,069 |
The Donna Foundation Inc Atlantic Beach, FL | $270,716 | $1,590,940 |
Morgan Pressel Foundation Inc Boca Raton, FL | $725,542 | $823,616 |
Pipers Angels Foundation Inc North Palm Beach, FL | $478,705 | $801,520 |
Girl Power 2 Cure Inc Fernandina Beach, FL | $191,513 | $668,056 |
Isakson Initiative Inc Atlanta, GA | $1,622,312 | $1,140,837 |
Kirk A And Dorothy P Landon Foundation Miami, FL | $1,258,511 | $183,633 |
Torch Relay For Childrens Miracle Network Inc Orlando, FL | $0 | $400,391 |
Long Island 2 Day Walk To Fight Breast Cancer Naples, FL | $8,475 | $205,598 |
Runway To Hope Inc Orlando, FL | $401,732 | $143,653 |