Lymphangiomatosis & Gorhams Disease Alliance Inc
- Assets
- $662.6k
- Revenue
- $323.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Saint Petersburg, FL
- Founding
- 03/2008
- Data as of
- 06/2021
- EIN
- 26-1224181
Organization Overview
Lymphangiomatosis & Gorhams Disease Alliance Inc is located in Saint Petersburg, FL. The organization was established in 2008. According to its NTEE Classification (G99) the organization is classified as: Voluntary Health Associations & Medical Disciplines N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Lymphangiomatosis & Gorhams Disease Alliance Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2021, Lymphangiomatosis & Gorhams Disease Alliance Inc generated $323.0k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 14.6% each year . All expenses for the organization totaled $211.4k during the year ending 06/2021. While expenses have increased by 7.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION & PATIENT DISCUSSION FORUM.
Describe the Organization's Program Activity:
Part 3 - Line 4a
WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION & PATIENT DISCUSSION FORUM.
RESEARCH GRANT TO UNIVERSITY OF PA
GRANT TO UPLIFT ATHLETE - A PILOT PROGRAM.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michael Kelly MD PHD Executive Director | OfficerTrustee | 30 | $0 |
Scott Weisner Chairman | OfficerTrustee | 10 | $0 |
Tiffany Ferry Director | Trustee | 30 | $0 |
Mitch Maersch Director | Trustee | 5 | $0 |
Scott Goldfarb Director | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $321,259 |
| Investment income | $1,749 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $323,008 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $873 |
| Fees for services: Accounting | $2,000 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $201 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $682 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $21,479 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,988 |
| All other expenses | $0 |
| Total functional expenses | $211,390 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $532,740 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $129,867 |
| Total assets | $662,607 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $5,530 |
| Total liabilities | $5,530 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total liabilities and net assets/fund balances | $657,077 |
Grants Awarded
Over the last fiscal year, Lymphangiomatosis & Gorhams Disease Alliance Inc has awarded $37,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Philadelphia, PA PURPOSE: research | $27,000 |
Redmond, OR PURPOSE: program | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 2 grants that Lymphangiomatosis & Gorhams Disease Alliance Inc has recieved totaling $465,329.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $465,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $329 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Zion Keepers Inc Stone Mountain, GA | $317,820 | $3,048,570 |
Pan American League Of Associations For Rheumatology Miami, FL | $3,590,661 | $1,287,704 |
Baker Gordon Educational Symposium Inc Coconut Grove, FL | $2,651 | $517,450 |
Jays Hope Foundation Inc Macon, GA | $509,492 | $516,054 |
T Leroy Jefferson Medical Society Inc Palm Beach Gardens, FL | $137,495 | $381,410 |
Cardiovascular Center Of Sarasota Foundation For Research And Educat Sarasota, FL | $1,048,363 | $329,640 |
Society On Cachexia And Wasting Disorders Inc Duluth, GA | $103,210 | $0 |
Lymphangiomatosis & Gorhams Disease Alliance Inc Saint Petersburg, FL | $662,607 | $323,008 |
Cantigny Research Foundation Inc Naples, FL | $4,855 | $144,506 |
Genesis Project Inc Miami, FL | $1,115,573 | $147,375 |
Lawson Neel Medbank Inc Thomasville, GA | $332,407 | $241,181 |
Rising Star Equestrian Foundation Inc Marietta, GA | $15,537 | $0 |