Families For Fragile X Inc
- Assets
- $218.3k
- Revenue
- $22.3k
- Investments
- $0.0
- Employees
- 0
- Location
- Miami, FL
- Founding
- 05/2008
- Data as of
- 12/2023
- EIN
- 26-0654462
Organization Overview
Families For Fragile X Inc is located in Miami, FL. The organization was established in 2008. According to its NTEE Classification (H96) the organization is classified as: Neurology & Neuroscience Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Families For Fragile X Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Families For Fragile X Inc generated $22.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (16.2%) each year. All expenses for the organization totaled $676.0 during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (37.6%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO SUPPORT FAMILIES WITH FRAGILE X SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO SUPPORT RESEARCH AND EDUCATION ON FRAGILE X SYNDROME
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Christina Chartouni-Calle Secretary | OfficerTrustee | 1 | $0 |
Mark Grimmel Director | Trustee | 1 | $0 |
Michele Kaplan President | OfficerTrustee | 1 | $0 |
Paul Kaplan Treasurer | OfficerTrustee | 1 | $0 |
Ari Rollnick Director | Trustee | 1 | $0 |
Vanessa Chartouni-De La Serna Vice Pres | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $15,581 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $0 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $15,581 |
| Total Program Service Revenue | $0 |
| Investment income | $2,637 |
| Tax Exempt Bond Proceeds | $6,463 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$2,345 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $22,336 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $550 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $126 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $676 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $33,987 |
| Savings and temporary cash investments | $4,176 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $180,139 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $218,302 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $218,302 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $218,302 |
Grants Awarded
Over the last fiscal year, Families For Fragile X Inc has awarded $85,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
UC DAVIS MIND INSTITUTE | | | $35,000 |
NATIONAL FRAGILE X FOUNDATION | | | $50,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Neurodegenerative Disease Research Inc Reddick, FL | $227,525 | $1,814,325 |
Caribbean Neurosurgery Foundation Sanford, FL | $25,124 | $57,885 |
Winning The Fight Tampa, FL | $93,598 | $0 |
Hydrocephalus And Neuroscience Institute Inc Orlando, FL | $251,608 | $282,093 |
Florida Association For The Study Of Headache Inc Palm Beach Gardens, FL | $177,841 | $30,188 |
Trinity Love Hoblit Foundation Inc Fernandina Beach, FL | $46,259 | $0 |
Neurological Injury Research And Educational Foundation Inc Clearwater, FL | $302,768 | $51,415 |
Neuromedical Research Foundation Inc Surfside, FL | $24,224 | $0 |
G Dolph Corradino Neuropuncture Research Corp Boynton Beach, FL | $9,173 | $0 |
Rengifo Parkinsons Foundation Inc Miami, FL | $470 | $0 |
Families For Fragile X Inc Miami, FL | $218,302 | $22,336 |