South Central Pennsylvania Sickle Cell Council
- Assets
- $4.8k
- Revenue
- $122.6k
- Investments
- $0.0
- Employees
- 3
- Location
- Harrisburg, PA
- Founding
- 05/1996
- Data as of
- 12/2023
- EIN
- 25-1750370
Organization Overview
South Central Pennsylvania Sickle Cell Council is located in Harrisburg, PA. The organization was established in 1996. According to its NTEE Classification (E32) the organization is classified as: Community Clinics, under the broad grouping of Health Care and related organizations. As of 12/2023, South Central Pennsylvania Sickle Cell Council employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. South Central Pennsylvania Sickle Cell Council is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, South Central Pennsylvania Sickle Cell Council generated $122.6k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 9 years, the organization has seen revenues fall by an average of (3.5%) each year. All expenses for the organization totaled $128.1k during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (4.1%) per year over the past 9 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO USE FINANCIAL, GOVERNMENTAL RELATIONS, LEGISLATIVE, AND CLINICAL INFLUENCE TO SUPPORT PATIENTS, FAMILIES, AND CAREGIVERS AFFECTED BY SICKLE CELL DISEASE THROUGH ADVOCACY, PROVIDING SUPPORT CARE SERVICES, AND INCREASING PUBLIC AWARENESS IN OUR 26 COUNTY SERVICE AREA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
MAINTAINING THE UNIFIED CARE PLAN THROUGHOUT THE REGION SPECIFIC TO INDIVIDUALS WITH SCD. PROVIDING AND DEVELOPING CASE MANAGEMENT DATA, TRACKING AND MAINTENANCE OF DATA SPECIFIC TO ALL INDIVIDUALS WITHIN THE SICKLE CELL DISEASE POPULATION. EDUCATION AND AWARENESS FOR ALL AGE GROUPS WITH SICKLE CELL DISEASE AND FOR THEIR FAMILY. PROVIDING SUPPORT GROUPS DESIGNED TO ESTABLISH A STRONG SUPPORT NETWORK FOR THOSE AFFECTED BY SICKLE CELL DISEASE. THESE GROUPS INCLUDE SICKLE CELL PARENTS, CAREGIVERS, AND FRONTLINE WORKERS IN THE REGION.
EDUCATION AND AWARENESS FOR THE TEENAGERS AND YOUNG ADULTS WITH SCD WHO ARE TRANSITIONING TO ADULT CARE SYSTEMS. TO HELP THESE GROUPS WITH SICKLE CELL DISEASE (SCD) BY INCREASING AND IMPROVING THE UNDERSTANDING OF DISEASE KNOWLEDGE, INCREASING INDEPENDENT SELF-CARE PRACTICES, IMPROVED SELF ADVOCATING AND COMMUNICATION WITH HEALTHCARE PROVIDERS, AND THE ABILITY TO NAVIGATE THE COMPLEX ADULT CARE SYSTEMS. THIS IS ACCOMPLISHED THROUGH PEDIATRIC/YOUNG ADULT AGE SPECIFIC GROUPS WHICH INCLUDE EDUCATIONAL SESSIONS, ACTIVITIES, AND DISCUSSION GROUPS ON THE SPECIFIC CHALLENGES.
CIRCULATING INTEREST AND EDUCATING INDIVIDUALS ON THE NEED TO PARTICIPATE IN BLOOD DONOR DRIVES AND SCREENING FOR THE SICKLE CELL TRAIT. HOSTING PODCASTS, BLOGS, SURVEYS, AND ATTENDING FAIRS AND COMMUNITY EVENTS TO PROMOTE AWARENESS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Natasha Burris Program Director | Trustee | 0 | $37,380 |
George Chandler Board Member | Trustee | 0 | $0 |
Royce Morris Board Member | Trustee | 0 | $0 |
Dwayne Golden Development Director | Trustee | 0 | $0 |
Gayle Smink Board Member | Trustee | 0 | $0 |
Herman Lawson Board Member | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $12,118 |
| All other contributions, gifts, grants, and similar amounts not included above | $110,469 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $122,587 |
| Total Program Service Revenue | $0 |
| Investment income | $2 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $122,589 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $1,322 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $71,548 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $1,054 |
| Payroll taxes | $5,945 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $7,320 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,508 |
| Advertising and promotion | $709 |
| Office expenses | $2,740 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $20,935 |
| Travel | $354 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $2,195 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $3,502 |
| All other expenses | $2,675 |
| Total functional expenses | $128,090 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,685 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $2,135 |
| Total assets | $4,820 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $54,292 |
| Other liabilities | $0 |
| Total liabilities | $54,292 |
| Net assets without donor restrictions | -$49,472 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,820 |