Epilepsy Association
- Assets
- $1.4m
- Revenue
- $652.1k
- Investments
- $0.0
- Employees
- 9
- Location
- Cleveland, OH
- Founding
- 11/1972
- Data as of
- 12/2023
- EIN
- 23-7198807
Organization Overview
Epilepsy Association is located in Cleveland, OH. The organization was established in 1972. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Epilepsy Association employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Epilepsy Association generated $652.1k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 0.5% each year. All expenses for the organization totaled $705.2k during the year ending 12/2023. While expenses have increased by 1.2% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
PROVIDING SPECIALIZED SERVICES FOR CHILDREN, TEENS, ADULTS AND FAMILIES AFFECTED BY EPILEPSY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT SERVICES: THE ASSOCIATION PROVIDES COMMUNITY CASE MANAGEMENT AND MENTAL HEALTH ASSESSMENT SERVICES TO ADULT CLIENTS WHO ARE AFFECTED BY EPILEPSY. CLIENTS MEET WITH AGENCY SOCIAL WORKERS TO ESTABLISH INDIVIDUALIZED GOALS. PLANS ARE ESTABLISHED TO ASSIST CLIENTS IN MEETING THOSE NEEDS. AN EMPHASIS IS PLACED ON CONSUMER CHOICE, MAINTAINING MEDICAL STABILITY, AND IMPROVING THE QUALITY OF LIFE FOR CLIENTS. IN 2023, THERE WERE 1,312 ADULTS WHO RECEIVED CASE MANAGEMENT AND OTHER SOCIAL SERVICES.
PUBLIC HEALTH EDUCATION: THE ASSOCIATION PROVIDES EDUCATIONAL PRESENTATIONS TO A VARIETY OF COMMUNITY GROUPS, STUDENTS, TEACHERS, AND THE GENERAL PUBLIC TO INCREASE THE AWARENESS AND UNDERSTANDING OF EPILEPSY. EDUCATION IS PROVIDED ABOUT EPILEPSY FACTS, SEIZURE RECOGNITION, AND EPILEPSY FIRST AID. 14,799 INDIVIDUALS WERE REACHED THROUGH COMMUNITY EDUCATION PROGRAMS AND ANOTHER 186 INDIVIDUALS ACCESSED ASSISTANCE THROUGH INFORMATION AND REFERRAL PROGRAMMING.
KIDS AND FAMILY: THE ASSOCIATION PROVIDES SUPPORT FOR FAMILIES WHO HAVE A CHILD WITH EPILEPSY. THE ASSOCIATION STAFF ASSESS THE NEEDS OF EACH FAMILY MEMBER WITH ONE-ON-ONE SUPPORT AND CONNECTS THEM WITH COMMUNITY SERVICES, PROVIDES GENERAL ASSISTANCE, EPILEPSY EDUCATION AND ADVOCACY. SERVICES ARE TAILORED TO MEET THE UNIQUE NEEDS OF EACH FAMILY. IN 2023, THERE WERE 300 CHILDREN AND FAMILIES WHO WERE SERVED THROUGH PROGRAMMING AND 125 VIRTUAL VISITS PROVIDED TO INDIVIDUALS AND SCHOOLS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kelley Needham CEO | Officer | 40 | $121,104 |
Patricia Varanese Ed | Officer | 40 | $20,983 |
Ben Young Director | Trustee | 1 | $0 |
Brittany Folino Director | Trustee | 1 | $0 |
Joseph Murlin Director | Trustee | 1 | $0 |
Louis Broussard Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $3,357 |
| Membership dues | $0 |
| Fundraising events | $234,449 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $235,618 |
| Noncash contributions included in lines 1a–1f | $44,438 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $473,424 |
| Total Program Service Revenue | $168,257 |
| Investment income | $26,203 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $3,540 |
| Net Income from Fundraising Events | -$19,344 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $652,080 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $188,331 |
| Compensation of current officers, directors, key employees. | $7,816 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $241,527 |
| Pension plan accruals and contributions | $11,236 |
| Other employee benefits | $36,971 |
| Payroll taxes | $33,997 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $5,491 |
| Fees for services: Other | $78,367 |
| Advertising and promotion | $2,214 |
| Office expenses | $17,602 |
| Information technology | $25,212 |
| Royalties | $0 |
| Occupancy | $30,600 |
| Travel | $15,933 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $4,657 |
| Insurance | $7,606 |
| All other expenses | $0 |
| Total functional expenses | $705,180 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $258 |
| Savings and temporary cash investments | $153,849 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $57,749 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $723 |
| Net Land, buildings, and equipment | $19,605 |
| Investments—publicly traded securities | $1,053,522 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $65,935 |
| Total assets | $1,351,641 |
| Accounts payable and accrued expenses | $25,869 |
| Grants payable | $0 |
| Deferred revenue | $10,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $65,906 |
| Total liabilities | $101,775 |
| Net assets without donor restrictions | $1,014,866 |
| Net assets with donor restrictions | $235,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,351,641 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Trinity Health Pace Farmington Hills, MI | $2,509,770 | $20,812,969 |
Epilepsy Alliance Ohio Cincinnati, OH | $2,035,024 | $4,297,077 |
Epilepsy Association Of Western And Central Pa Pittsburgh, PA | $6,030,931 | $1,484,033 |
Epilepsy Foundation Of Michigan Southfield, MI | $2,392,555 | $1,296,554 |
Epilepsy Foundation Of Easter Pa Philadelphia, PA | $970,824 | $862,515 |
Epilepsy Association Cleveland, OH | $1,351,641 | $652,080 |
Epilepsy Foundation Of Kentuckiana Inc Louisville, KY | $365,274 | $557,634 |
Pace Trust For Community Creative Visual Arts Louisville, KY | $0 | $342 |
Hope Love Cure In Memory Of Brian Danner Mc Cutchenville, OH | $4,960 | $1,661 |
Brookes Finding A Cure Foundation Inc Louisville, KY | $0 | $0 |
Rock And Ride For The Cure Inc C/O Roger Panfil Jr Yardley, PA | $0 | $0 |