Epilepsy Association

Organization Overview

Epilepsy Association is located in Cleveland, OH. The organization was established in 1972. According to its NTEE Classification (G54) the organization is classified as: Epilepsy, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Epilepsy Association employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Epilepsy Association generated $723.6k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.1% each year. All expenses for the organization totaled $643.6k during the year ending 12/2021. While expenses have increased by 0.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

PROVIDING SPECIALIZED SERVICES FOR CHILDREN, TEENS, ADULTS AND FAMILIES AFFECTED BY EPILEPSY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

PATIENT SERVICES: THE ASSOCIATION PROVIDES COMMUNITY CASE MANAGEMENT AND MENTAL HEALTH ASSESSMENT SERVICES TO ADULT CLIENTS WHO ARE AFFECTED BY EPILEPSY. CLIENTS MEET WITH AGENCY SOCIAL WORKERS TO ESTABLISH INDIVIDUALIZED GOALS. PLANS ARE ESTABLISHED TO ASSIST CLIENTS IN MEETING THOSE NEEDS. AN EMPHASIS IS PLACED ON CONSUMER CHOICE, MAINTAINING MEDICAL STABILITY, AND IMPROVING THE QUALITY OF LIFE FOR CLIENTS. IN 2021, THERE WERE 445 ADULTS WHO RECEIVED CASE MANAGEMENT AND OTHER SOCIAL SERVICES.


PUBLIC HEALTH EDUCATION: THE ASSOCIATION PROVIDES EDUCATIONAL PRESENTATIONS TO A VARIETY OF COMMUNITY GROUPS, STUDENTS, TEACHERS, AND THE GENERAL PUBLIC TO INCREASE THE AWARENESS AND UNDERSTANDING OF EPILEPSY. EDUCATION IS PROVIDED ABOUT EPILEPSY FACTS, SEIZURE RECOGNITION, AND EPILEPSY FIRST AID. 5,352 INDIVIDUALS WERE REACHED THROUGH COMMUNITY EDUCATION PROGRAMS AND ANOTHER 175 INDIVIDUALS ACCESSED ASSISTANCE THROUGH INFORMATION AND REFERRAL PROGRAMMING.


KIDS AND FAMILY: THE ASSOCIATION PROVIDES SUPPORT FOR FAMILIES WHO HAVE A CHILD WITH EPILEPSY. THE ASSOCIATION STAFF ASSESS THE NEEDS OF EACH FAMILY MEMBER WITH ONE-ON-ONE SUPPORT AND CONNECTS THEM WITH COMMUNITY SERVICES, PROVIDES GENERAL ASSISTANCE, EPILEPSY EDUCATION AND ADVOCACY. SERVICES ARE TAILORED TO MEET THE UNIQUE NEEDS OF EACH FAMILY. IN 2021, THERE WERE 278 CHILDREN AND FAMILIES WHO WERE SERVED THROUGH PROGRAMMING.


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Board, Officers & Key Employees

Name (title)Compensation
Kelley S Needham
CEO
$113,527
Mark Holcomb
Treasurer
$0
Carole Barita
Secretary
$0
Susan Stamberger
Vice President
$0
E Sean Medina
President
$0
Jeffery Karlovec
Trustee
$0

Financial Statements

Statement of Revenue
Federated campaigns$8,342
Membership dues$0
Fundraising events$238,566
Related organizations$0
Government grants $62,900
All other contributions, gifts, grants, and similar amounts not included above$249,925
Noncash contributions included in lines 1a–1f $36,957
Total Revenue from Contributions, Gifts, Grants & Similar$559,733
Total Program Service Revenue$167,145
Investment income $17,022
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $22,345
Net Income from Fundraising Events -$42,678
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $723,567

Grants Recieved

Over the last fiscal year, we have identified 11 grants that Epilepsy Association has recieved totaling $123,961.

Awarding OrganizationAmount
Elizabeth Severance Prentiss Foundation

Pittsburgh, PA

PURPOSE: ADULT MENTAL HEALTH CASE

$50,000
Cleveland Foundation

Cleveland, OH

PURPOSE: GENERAL SUPPORT

$45,250
Ridgecliff Foundation

Fairview Park, OH

PURPOSE: SERVING INDIVDUALS IMPACTED BY EPILE

$10,000
Ridgecliff Foundation

Fairview Park, OH

PURPOSE: SERVING INDIVDUALS IMPACTED BY EPILE

$10,000
Summa Health Group Return

Akron, OH

PURPOSE: PREVENTION, WELLNESS, ACCESS TO CARE AND HEALTH DISPARITIES

$5,750
S K Wellman Foundation

Cleveland, OH

PURPOSE: MEDICAL RESEARCH

$2,000
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$956,973
Earnings$131,644
Other Expense-$6,045
Ending Balance$1,094,662

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