Congenital Adrenal Hyperplasia Research Education & Support Fdtn
- Assets
- $541.0k
- Revenue
- $791.7k
- Investments
- $0.0
- Employees
- 5
- Location
- Union, NJ
- Founding
- 07/2001
- Data as of
- 12/2021
- EIN
- 22-3755684
Organization Overview
Congenital Adrenal Hyperplasia Research Education & Support Fdtn is located in Union, NJ. The organization was established in 2001. According to its NTEE Classification (G11) the organization is classified as: Single Organization Support, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Congenital Adrenal Hyperplasia Research Education & Support Fdtn employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Congenital Adrenal Hyperplasia Research Education & Support Fdtn is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Congenital Adrenal Hyperplasia Research Education & Support Fdtn generated $791.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 7.5% each year. All expenses for the organization totaled $565.6k during the year ending 12/2021. While expenses have increased by 3.7% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
CARES FOUNDATION IS A NONPROFIT ORGANIZATION COMMITTED TO IMPROVING THE LIVES OF FAMILIES AND INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH FOR A BETTER UNDERSTANDING OF CAH, BETTER TREATMENTS AND A CURE; EDUCATING THE PUBLIC AND HEALTHCARE PROFESSIONALS ABOUT ALL FORMS OF CAH; ADVOCATING FOR UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; AND COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES AND RESOURCES VITAL TO THE CAH COMMUNITY WORLDWIDE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FAMILY SUPPORT & EDUCATION PROVIDES EDUCATIONAL MATERIALS AND INFORMATION FOR LIVING WITH THE DAILY CHALLENGES OF CONGENITAL ADRENAL HYPERPLASIA (CAH). OUR TOOLS HELP THOSE AFFECTED BY CAH TO BETTER CARE AND ADVOCATE FOR THEMSELVES AND THEIR FAMILIES. OUR CONFERENCES ENABLE OUR COMMUNITY TO HAVE DIRECT ACCESS TO THE TOP EXPERTS IN THE COUNTRY AND PROVIDE OPPORTUNITES FOR CONNECTING WITH OTHERS.
WARMLINE SUPPORT PROVIDES INDIVIDUALS AND PARENTS OF CHILDREN WITH CAH A ONE-ON-ONE SOURCE OF INFORMATION AND SUPPORT, WHICH INCLUDES PHYSICIAN AND RESOURCE REFERRALS, VIA TELEPHONE, EMAIL AND MAIL.
CAH AWARENESS-EDUCATING THE PUBLIC AND PHYSICIANS ABOUT ALL FORMS OF CONGENITAL ADRENAL HYPERPLASIA, ITS SYMPTOMS, PORTOCOLS, TREATMENTS, GENETIC FREQUENCY AND THE NECESSITY OF EARLY INTERVENTION AND BENEFITS OF NEWBORN SCREENING.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jessica Margolies Secretary | OfficerTrustee | 5 | $0 |
Carlos Dasilva Treasurer | OfficerTrustee | 10 | $0 |
Karen Bogaard Past President | OfficerTrustee | 10 | $0 |
Louise Fleming PHD RN Board Chair | OfficerTrustee | 10 | $0 |
Alexandra Dubois Vice Chair | OfficerTrustee | 10 | $0 |
Brian Stair Trustee | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $59,741 |
| All other contributions, gifts, grants, and similar amounts not included above | $447,448 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $507,189 |
| Total Program Service Revenue | $282,117 |
| Investment income | $1,371 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $986 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $791,663 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $303,331 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $24,943 |
| Fees for services: Management | $1,221 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $5,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $5,448 |
| Advertising and promotion | $0 |
| Office expenses | $2,472 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $1,417 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,232 |
| Insurance | $13,836 |
| All other expenses | $20,173 |
| Total functional expenses | $565,562 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $70,490 |
| Savings and temporary cash investments | $441,125 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $25,365 |
| Net Land, buildings, and equipment | $3,991 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $540,971 |
| Accounts payable and accrued expenses | $15,985 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $15,985 |
| Net assets without donor restrictions | $524,986 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $540,971 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Congenital Adrenal Hyperplasia Research Education & Support Fdtn has recieved totaling $109,425.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $61,150 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $24,143 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $19,137 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $3,510 |
Meg And Tim Callahan Family Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $1,000 |
American Express Foundation New York, NY PURPOSE: GENERAL SUPPORT | $285 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Hki Support Inc New York, NY | $0 | $18,599,175 |
Parker Health Group Inc Piscataway, NJ | $67,295,673 | $119,614 |
Suite 130 Plastic Surgery Pc Westbury, NY | $311,544 | $6,208,603 |
Transplant Foundation Philadelphia, PA | $69,009,856 | $12,071,703 |
Runnemede Industries Inc Cherry Hill, NJ | $150,465 | $926,469 |
Oxalosis And Hyperoxaluria Foundation New Paltz, NY | $5,688,162 | $1,693,241 |
Trust Fbo Assoc Services For The Blind Paoli, PA | $0 | $28,104 |
Jake Gittlen Memorial Golf Tournament Mars, PA | $8,677,851 | $1,582,078 |
Congenital Adrenal Hyperplasia Research Education & Support Fdtn Union, NJ | $540,971 | $791,663 |
American Friends Of London School Of Hygiene & Tropical Medicine Inc New Yorkl, NY | $0 | $0 |
Beer Yitzhak Foundation Inc Lyndhurst, NJ | $401,398 | $497,100 |
International Friends Of Elton John Aids Foundation Uk New York, NY | $0 | $305,257 |