Platelet Disorder Support Association Inc
- Assets
- $4.5m
- Revenue
- $1.8m
- Investments
- $0.0
- Employees
- 9
- Location
- Brecksville, OH
- Founding
- 08/1999
- Data as of
- 12/2021
- EIN
- 22-3611011
Organization Overview
Platelet Disorder Support Association Inc, operating under the name Platelet Disorder Support Associati, is located in Brecksville, OH. The organization was established in 1999. According to its NTEE Classification (E61) the organization is classified as: Blood Banks, under the broad grouping of Health Care and related organizations. As of 12/2021, Platelet Disorder Support Associati employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Platelet Disorder Support Associati is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Platelet Disorder Support Associati generated $1.8m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 12.1% each year . All expenses for the organization totaled $1.1m during the year ending 12/2021. While expenses have increased by 5.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PDSA'S MISSION IS TO ENHANCE THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH AND SUPPORT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
2021 BROUGHT WITH IT CONTINUED UNCERTAINTY IN THE FACE OF THE COVID-19 PANDEMIC. AND WHILE THE ROLL-OUT OF VACCINES OFFERED THE WORLD GREAT HOPE, IT ALSO PRESENTED ADDITIONAL CONCERNS FOR THOSE LIVING WITH AUTOIMMUNE DISORDERS LIKE ITP. RECOGNIZING THE DIRE NEED FOR RESEARCH AND INFORMATION IN THIS SPACE, PDSA TOOK THE LEAD BY ACCELERATING RESEARCH AND EDUCATING PATIENTS, CAREGIVERS, AND CLINICIANS ON THE IMPACT OF THE COVID-19 VIRUS AND ITS VACCINES ON THE ITP POPULATION THROUGH OUR ITP NATURAL HISTORY STUDY PATIENT REGISTRY. OUR MEDICAL ADVISORS AND STAFF REMAINED VIGILANT IN RESPONSE TO THE HEIGHTENED NEEDS OF THE ITP COMMUNITY, PROVIDING ONGOING GUIDANCE, DATA, AND SUPPORT, THROUGH OUR OUR WEBSITE, PDSA.ORG, WHICH AVERAGED 85,000 MONTHLY VISITORS OVER THE COURSE OF 2021; THROUGH RESEARCH ARTICLES AND COMMENTARY WRITTEN FOR PDSA'S MONTHLY E-NEWS AND 28-PAGE QUARTERLY NEWSLETTER, THE PLATELET NEWS, AND VIA SOCIAL MEDIA CHANNELS. PDSA'S 62 LOCAL SUPPORT GROUPS HELD 73 PATIENT SUPPORT GROUP MEETINGS WITH 1,000+ PATIENT AND CAREGIVER'S PARTICIPATING. IN 2021, WE CREATED A NEW PROGRAM: ITP INSIGHTS, A QUARTERLY WEBINAR FOCUSING ON TOPICS IMPORTANT TO THE ITP PATIENT COMMUNITY. THE VIDEOS HAVE NOW BEEN SEEN BY MORE THAN 1,500 PEOPLE. FOR OUR ITP CONFERENCE 2021, WE UPDATED OUR OWN CUSTOMIZED VIRTUAL PLATFORM FOR TWO DAYS OF LIVE AND ON-DEMAND PROGRAMMING, WITH CLOSE TO 700 PARTICIPANTS FROM MORE THAN 25 COUNTRIES. CALLS AND EMAILS TO THE PDSA OFFICE AND TO OUR FB PAGE CONTINUED WITH STAFF ANSWERING ON AVERAGE 10 PER DAY VIA OUR ITP HELPLINE. THIS WAS IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS, COLLEGE SCHOLARSHIP PROGRAM, UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS, ATTENDING AND EXHIBITING AT SCIENTIFIC MEETINGS (VIRTUAL), AUTHORING MULTIPLE SCIENTIFIC PUBLICATIONS, AWARDING THEE 20,000 GRANTS TO INVESTIGATORS CONDUCTING INNOVATIVE ITP RESEARCH, AND OVERSEEING THE WEBSITE GLOBALITP.ORG AND THE INTERNATIONAL ITP ALLIANCE, WHICH HAS GROWN TO 32 PATIENT ASSOCIATIONS FROM 27 COUNTRIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Caroline Kruse President An | Officer | 40 | $168,150 |
Peter Pruitt Chair | OfficerTrustee | 1 | $0 |
Kim Everett Treasurer | OfficerTrustee | 1 | $0 |
Beth Siegelbaum Secretary | OfficerTrustee | 1 | $0 |
Karen Avrick Director | Trustee | 1 | $0 |
Derek Zimmerman Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $160,817 |
| Fundraising events | $222,130 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,357,382 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,740,329 |
| Total Program Service Revenue | $0 |
| Investment income | $4,293 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $70,700 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $2,267 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,820,587 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $58,014 |
| Grants and other assistance to domestic individuals. | $4,683 |
| Grants and other assistance to Foreign Orgs/Individuals | $50,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $168,651 |
| Compensation of current officers, directors, key employees. | $16,865 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $420,267 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $40,900 |
| Payroll taxes | $50,228 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $10,297 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $51,776 |
| Advertising and promotion | $0 |
| Office expenses | $66,226 |
| Information technology | $16,395 |
| Royalties | $0 |
| Occupancy | $39,055 |
| Travel | $605 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $50,498 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $12,426 |
| Insurance | $4,758 |
| All other expenses | $1,047 |
| Total functional expenses | $1,063,681 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $729,415 |
| Savings and temporary cash investments | $3,575,075 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $150,319 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,195 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $46,268 |
| Total assets | $4,502,272 |
| Accounts payable and accrued expenses | $104,060 |
| Grants payable | $0 |
| Deferred revenue | $218,970 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $323,030 |
| Net assets without donor restrictions | $3,849,695 |
| Net assets with donor restrictions | $329,547 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,502,272 |
Grants Awarded
Over the last fiscal year, Platelet Disorder Support Association Inc has awarded $58,014 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: ITP RESEARCH | $28,014 |
UNIVERSITY OF WASHINGTON PURPOSE: ITP RESEARCH | $20,000 |
CHILDREN'S HOSPITAL CORP PURPOSE: ITP RESEARCH | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Platelet Disorder Support Association Inc has recieved totaling $17,634.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $17,534 |
Mitsubishi Electric America Foundation Arlington, VA PURPOSE: GENERAL SUPPORT | $50 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $50 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Central Pennsylvania Blood Bank Hummelstown, PA | $15,323,088 | $15,845,054 |
Community Blood Bank Of Erie County Erie, PA | $4,765,344 | $7,315,066 |
Williamsport Area Ambulance Service Cooperative Pittsburgh, PA | $2,645,116 | $6,256,971 |
Western Kentucky Regional Blood Center Inc Owensboro, KY | $3,296,168 | $3,404,497 |
Pocono Mountain Regional Emergency Medical Services Inc Tobyhanna, PA | $3,234,730 | $3,504,983 |
The Institute For Transfusion Medicine Pittsburgh, PA | $0 | $5,367,258 |
Blood Science Foundation Pittsburgh, PA | $54,733,900 | $2,135,841 |
Platelet Disorder Support Association Inc Brecksville, OH | $4,502,272 | $1,820,587 |
South Central Association Of Blood Banks Lexington, KY | $202,047 | $265,009 |
Greenwood Band Parents Organization Inc Greenwood, IN | $156,557 | $167,597 |
Ohio Association Of Blood Banks Delaware, OH | $0 | $0 |