Platelet Disorder Support Association Inc, operating under the name Platelet Disorder Support Associati, is located in Brecksville, OH. The organization was established in 1999. According to its NTEE Classification (E61) the organization is classified as: Blood Banks, under the broad grouping of Health Care and related organizations. As of 12/2023, Platelet Disorder Support Associati employed 8 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Platelet Disorder Support Associati is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Platelet Disorder Support Associati generated $2.3m in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 12.4% each year . All expenses for the organization totaled $1.5m during the year ending 12/2023. While expenses have increased by 8.5% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
PDSA'S MISSION IS TO ENHANCE THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH AND SUPPORT.
Describe the Organization's Program Activity:
Part 3 - Line 4a
2023 WAS AN EXTREMELY BUSY YEAR FOR PDSA AS WE CELEBRATED THE ORGANIZATION'S 25TH ANNIVERSARY. IT WAS OUR GOAL TO ORGANIZE WITH OUR VOLUNTEERS 25 AWARENESS EVENTS, INCLUDING FUNDRAISERS AND NATIONAL WALK/RUN "PUMP IT UP FOR PLATELETS- AND WE REACHED THAT GOAL. OUR 62 LOCAL SUPPORT GROUPS HELD A TOTAL OF 73 MEETINGS AND TWO FACILITATOR WORKSHOPS. ITP CONFERENCE 2023 TOOK PLACE IN CHICAGO AND WAS OUR 3RD LARGEST CONFERENCE IN 23 YEARS WITH 285 ATTENDEES, FROM 15 COUNTRIES AND 30 STATES. IN ADDITION, WE OFFERED A VIRTUAL CONFERENCE PLATFORM WITH 1,098 PDSA MEMBERS GIVEN ACCESS TO THE VIRTUAL CONTENT IN SEPTEMBER FOR ITP AWARENESS MONTH. PDSA HOSTED A WEBINAR WITH THE ITP SUPPORT ASSOCIATION IN THE UK AND TWO WORLD- RENOWNED ITP EXPERTS IN RECOGNITION OF GLOBAL ITP AWARENESS WEEK. PDSA ALSO HOSTED THE INTERNATIONAL ITP ALLIANCE MEETING AS PART OF ITP CONFERENCE 2023. FOURTEEN GLOBAL AMBASSADORS REPRESENTING 12 COUNTRIES PARTICIPATED IN THE MEETING. ON THE RESEARCH FRONT, PDSA STAFF ATTENDED, EXHIBITED AND PRESENTED EDUCATIONAL PROGRAMS AT A NUMBER OF SCIENTIFIC/MEDICAL MEETINGS INCLUDING AMERICAN SOCIETY OF PEDIATRIC HEMATOLOGY /ONCOLOGY (ASPHO), NATIONAL ORGANIZATION OF RARE DISORDERS (NORD) RARE DISEASE SUMMIT AND THE NORD LIVING RARE, LIVING STRONGER PATIENT/FAMILY FORUM, AND THE AMERICAN SOCIETY OF HEMATOLOGY/ONCOLOGY ANNUAL MEETING AND EXHIBITION (ASH). PDSA ALSO ORGANIZED AND HOSTED THE ASH ITP BREAKFAST AND ICON (ITP CONSORTIUM OF NORTH AMERICA) ANNUAL MEETING WITH 250 ATTENDEES. OUR ABSTRACTS ON PATIENT QUALITY OF LIFE WERE PRESENTED AT ASH, EHA (EUROPEAN HEMATOLOGY/ONCOLOGY ASSOCIATION) AND NORD. WE FUNDED FOUR INNOVATIVE PATIENT-CENTERED ITP RESEARCH STUDIES IN 2023. PDSA WAS VERY ACTIVE ON THE ADVOCACY FRONT, WITH STAFF AND MEDICAL ADVISORS MEETING WITH DIRECTORS FROM THE DIVISION OF BLOOD DISORDERS AT BOTH THE NHLBI (NATIONAL HEART, LUNG AND BLOOD INSTITUTE) AND THE CDC (CENTERS FOR DISEASE CONTROL AND PREVENTION). WE ORGANIZED TWO HILL DAYS IN WASHINGTON, DC, MEETING WITH 26 CONGRESSIONAL OFFICES TO EDUCATE THEM ON THE UNMET NEEDS AND BURDEN OF DISEASE OF ITP PATIENTS AND URGING THEM TO SUPPORT FEDERAL PROGRAMS FOR ITP. DUE TO OUR EFFORTS, THE DEPARTMENT OF HEALTH AND HUMAN SERVICES INCLUDED ITP REPORT LANGUAGE IN SENATE APPROPRIATIONS BILL - A FIRST THIS MEANS THAT CONGRESS HAS RECOGNIZED THE IMPORTANCE OF GREATER AWARENESS FOR ITP. PDSA STAFF AND OUR MEDICAL ADVISORS CONTINUED TO ANSWER PATIENT/CAREGIVER CALLS AND EMAILS VIA OUR ITP HELPLINE. THIS WAS ALL IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS, COLLEGE SCHOLARSHIP PROGRAM, UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS, AND PRODUCING A 28-PAGE QUARTERLY NEWSLETTER AND MONTHLY E- NEWSLETTER.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Caroline Kruse President An | Officer | 40 | $186,730 |
Peter Pruitt Chair | OfficerTrustee | 1 | $0 |
Kim Everett Treasurer | OfficerTrustee | 1 | $0 |
Robert Feiner Director | Trustee | 1 | $0 |
Melissa Hilsabeck Director | Trustee | 1 | $0 |
Linda Mcguirl Director | Trustee | 1 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $148,796 |
Fundraising events | $152,893 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $1,870,267 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $2,171,956 |
Total Program Service Revenue | $0 |
Investment income | $136,105 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $15,200 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $5,426 |
Miscellaneous Revenue | $0 |
Total Revenue | $2,330,983 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $23,000 |
Grants and other assistance to domestic individuals. | $33,000 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $186,730 |
Compensation of current officers, directors, key employees. | $18,637 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $434,472 |
Pension plan accruals and contributions | $13,085 |
Other employee benefits | $44,707 |
Payroll taxes | $50,697 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $27,514 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $12,624 |
Fees for services: Other | $137,356 |
Advertising and promotion | $0 |
Office expenses | $78,278 |
Information technology | $20,575 |
Royalties | $0 |
Occupancy | $30,732 |
Travel | $38,691 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $324,251 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $12,426 |
Insurance | $4,842 |
All other expenses | $0 |
Total functional expenses | $1,495,300 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $433,303 |
Savings and temporary cash investments | $1,138,829 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $129,925 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $29,364 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $4,617,227 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $21,407 |
Total assets | $6,370,055 |
Accounts payable and accrued expenses | $145,780 |
Grants payable | $0 |
Deferred revenue | $180,667 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $326,447 |
Net assets without donor restrictions | $5,162,009 |
Net assets with donor restrictions | $881,599 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $6,370,055 |
Over the last fiscal year, Platelet Disorder Support Association Inc has awarded $40,000 in support to 2 organizations.
Grant Recipient | Amount |
---|---|
EMORY UNIVERSITY PURPOSE: ITP RESEARCH | $20,000 |
AMERICAN UNIVERSITY PURPOSE: ITP RESEARCH | $20,000 |
Organization Name | Assets | Revenue |
---|---|---|
Central Pennsylvania Blood Bank Hummelstown, PA | $20,939,073 | $18,687,264 |
Community Blood Bank Of Erie County Erie, PA | $4,870,500 | $7,467,527 |
Williamsport Area Ambulance Service Cooperative Pittsburgh, PA | $2,228,443 | $6,221,582 |
Vitalant Foundation Pittsburgh, PA | $45,366,321 | $2,829,576 |
Pocono Mountain Regional Emergency Medical Services Inc Tobyhanna, PA | $2,750,656 | $3,892,437 |
Western Kentucky Regional Blood Center Inc Owensboro, KY | $3,508,441 | $3,589,756 |
The Institute For Transfusion Medicine Pittsburgh, PA | $0 | $5,367,258 |
Platelet Disorder Support Association Inc Brecksville, OH | $6,370,055 | $2,330,983 |
Greenwood Band Parents Organization Inc Greenwood, IN | $128,331 | $180,385 |
South Central Association Of Blood Banks Lexington, KY | $192,648 | $179,117 |
Ohio Association Of Blood Banks Delaware, OH | $0 | $0 |