Neurofibromatosis Midwest
- Assets
- $293.6k
- Revenue
- $241.2k
- Investments
- $0.0
- Employees
- 6
- Location
- St Charles, IL
- Founding
- 10/1993
- Data as of
- 09/2023
- EIN
- 22-2580173
Organization Overview
Neurofibromatosis Midwest is located in St Charles, IL. The organization was established in 1993. According to its NTEE Classification (H96) the organization is classified as: Neurology & Neuroscience Research, under the broad grouping of Medical Research and related organizations. As of 09/2023, Neurofibromatosis Midwest employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Neurofibromatosis Midwest is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2023, Neurofibromatosis Midwest generated $241.2k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (2.3%) each year. All expenses for the organization totaled $262.6k during the year ending 09/2023. As we would expect to see with falling revenues, expenses have declined by (3.4%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2018, Neurofibromatosis Midwest has awarded 16 individual grants totaling $305,184. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
EDUCATION AND SUPPORT FOR THOSE WITH NEUROFIBROMATOSIS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH/CLINICS/IMPROVED CARE NEUROFIBROMATOSIS MIDWEST PROVIDES DIRECT GRANTS FOR RESEARCH AND RESEARCH SUPPORT. WE ALSO WORK WITH CLINICS IN OUR REGION TO IMPROVE CARE AND ACCESS TO CARE. ADDITIONALLY, WE WORK WITH THE NF COMMUNITY AND MANY OTHER RESOURCES ON ADDITIONAL PROGRAMS OR INITIATIVES TO IMPROVE THE QUALITY OF LIFE AND CARE FOR NF PATIENTS AND THEIR FAMILIES.
SUPPORT/EDUCATION/AWARENESS NEUROFIBROMATOSIS MIDWEST PROVIDES EDUCATION TO INDIVIDUALS AND FAMILIES WITH NEUROFIBROMATOSIS, TO THE MEDICAL COMMUNITY AND TO THE PUBLIC THROUGH AN ANNUAL SYMPOSIUM; SMALLER LOCAL MEETINGS; AND PRINTED AND ONLINE MATERIALS. WE PROVIDE FREE PACKETS OF INFORMATION TO NEWLY DIAGNOSED FAMILIES AND PHONE AND ONLINE SUPPORT. AN ANNUAL GRANT IS PROVIDED TO SEND CHILDREN WITH NF TO CAMP. WE ALSO PROVIDE MATERIALS AND OPPORTUNITIES TO RAISE AWARENESS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Denise Dulceak Board Chair | OfficerTrustee | 1 | $0 |
Diana Haberkamp Executive Di | OfficerTrustee | 40 | $0 |
Gail Mavrogenes Board Member | Trustee | 1 | $0 |
Andy Ringo Treasurer | OfficerTrustee | 1 | $0 |
Lesli Wegner Vice Chair | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $89,335 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $140,958 |
| Noncash contributions included in lines 1a–1f | $11,276 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $230,293 |
| Total Program Service Revenue | $0 |
| Investment income | $7,244 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $3,711 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | -$75 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $241,223 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $56,300 |
| Grants and other assistance to domestic individuals. | $3,982 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $108,070 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $8,268 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,750 |
| Fees for services: Lobbying | $10,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $336 |
| Office expenses | $12,756 |
| Information technology | $12,285 |
| Royalties | $0 |
| Occupancy | $15,278 |
| Travel | $8,579 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $310 |
| Interest | $0 |
| Payments to affiliates | $12,849 |
| Depreciation, depletion, and amortization | $668 |
| Insurance | $1,433 |
| All other expenses | $0 |
| Total functional expenses | $262,588 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $51,570 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $105 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $3,615 |
| Investments—publicly traded securities | $237,208 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,100 |
| Total assets | $293,598 |
| Accounts payable and accrued expenses | $874 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $874 |
| Net assets without donor restrictions | $292,724 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $293,598 |
Grants Awarded
Over the last fiscal year, Neurofibromatosis Midwest has awarded $56,300 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF CHICAGOUNIVERSITY OF CHICAGO PURPOSE: MAINTAIN STUDIES | $34,000 |
BRAINY CAMPS PURPOSE: SUMMER CAMP | $13,000 |
UNIVERSITY OF WISCONSIN-MILWAUKEE PURPOSE: MAINTAIN STUDIES | $9,300 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Neurosurgery Research And Education Foundation Rolling Meadows, IL | $17,113,606 | $2,938,037 |
Neurosurgery Foundation At Goodman Campbell Inc Carmel, IN | $6,206,379 | $2,347,213 |
Neurofibromatosis Midwest St Charles, IL | $293,598 | $241,223 |
The Association Of Indian Neurologists In America Kimberly, WI | $199,830 | $0 |
Society For Behavioral Neuroendocrinology Schaumburg, IL | $213,615 | $0 |
Adams Brain Charity Speedway, IN | $2,215 | $0 |