Charleys Fund Inc
- Assets
- $5.5m
- Revenue
- $1.8m
- Investments
- $0.0
- Employees
- 3
- Location
- Great Barrington, MA
- Founding
- 09/2005
- Data as of
- 12/2021
- EIN
- 20-2014968
Organization Overview
Charleys Fund Inc is located in Great Barrington, MA. The organization was established in 2005. According to its NTEE Classification (H50) the organization is classified as: Nerve, Muscle & Bone Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Charleys Fund Inc employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Charleys Fund Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Charleys Fund Inc generated $1.8m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 18.2% each year . All expenses for the organization totaled $1.8m during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO ACCELERATE THE DEVELOPMENT OF LIFE-SAVING TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY "DMD"
Describe the Organization's Program Activity:
Part 3 - Line 4a
SEE SCHEDULE O
SEE SCHEDULE O
WE SUPPORTED RESEACH AT THE UNIVERSITY OF MISSOURI TO COMPREHENSIVELY INVESTIGATE THE CAS9 IMMUNE RESPONSE TO THE CLINICAL APPLICATION OF CRISPR TECHNOLOGY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Laura Dalle Pazze President & COO | Officer | 55 | $241,853 |
Tracy Kramer Seckler Co-Founder & CEO | OfficerTrustee | 40 | $62,769 |
Benjamin Seckler MD Board Chairman | OfficerTrustee | 15 | $0 |
Earl Kramer Treasurer | OfficerTrustee | 2 | $0 |
Karen Climo Clerk | OfficerTrustee | 2 | $0 |
Kathe Kramer Chase Board Member | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $66,007 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,713,273 |
| Noncash contributions included in lines 1a–1f | $137,466 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $1,779,280 |
| Total Program Service Revenue | $0 |
| Investment income | $2,279 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$135 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $90 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $1,781,625 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,250,500 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $311,962 |
| Compensation of current officers, directors, key employees. | $61,578 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $107,436 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $14,090 |
| Payroll taxes | $26,941 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $21,223 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $291 |
| Fees for services: Other | $1,647 |
| Advertising and promotion | $0 |
| Office expenses | $29,805 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $6,200 |
| Travel | $622 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $385 |
| Insurance | $6,582 |
| All other expenses | $0 |
| Total functional expenses | $1,811,866 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,097 |
| Savings and temporary cash investments | $1,367,338 |
| Pledges and grants receivable | $886,240 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $2,462 |
| Prepaid expenses and deferred charges | $3,176 |
| Net Land, buildings, and equipment | $920 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $3,202,534 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $5,463,767 |
| Accounts payable and accrued expenses | $9,398 |
| Grants payable | $734,177 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $743,575 |
| Net assets without donor restrictions | $3,880,191 |
| Net assets with donor restrictions | $840,001 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,463,767 |
Grants Awarded
Over the last fiscal year, Charleys Fund Inc has awarded $1,250,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Shrewsbury, MA PURPOSE: RESEARCH GRANT | $1,200,000 |
CASIMIR LLC PURPOSE: RESEARCH GRANT | $30,000 |
Columbia, MO PURPOSE: RESEARCH GRANT | $20,000 |
Grants Recieved
Over the last fiscal year, we have identified 13 grants that Charleys Fund Inc has recieved totaling $563,273.
| Awarding Organization | Amount |
|---|---|
Edelman Fam Foundation New York, NY PURPOSE: TO PROVIDE GENERAL SUPPORT TO THE DUCHENNE PROGRAM AT UMASS MEDICAL SCHOOL TO ACCELERATE RESEARCH AND THE DEVELOPMENT OF NEW TREATMENTS FOR MUSCULAR DYSTROPHY IN CHILDREN. | $200,000 |
Jbs Keys To Dmd Inc Dover, MA PURPOSE: DMD CLINIC | $100,000 |
Edelman Fam Foundation New York, NY PURPOSE: TO PROVIDE GENERAL SUPPORT TO THE DUCHENNE PROGRAM AT UMASS MEDICAL SCHOOL TO ACCELERATE RESEARCH AND THE DEVELOPMENT OF NEW TREATMENTS FOR MUSCULAR DYSTROPHY IN CHILDREN. | $100,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $86,933 |
Jerome M Cohen Foundation New York, NY PURPOSE: TO FURTHER DONOR'S PURPOSE | $30,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $16,035 |
Endowment Analysis
| Beg. Balance | $1,098,758 |
| Net Contributions | $645,000 |
| Other Expense | $903,757 |
| Ending Balance | $840,001 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Childrens Tumor Foundation New York, NY | $29,600,801 | $16,779,578 |
Jacobs Institute Inc Buffalo, NY | $6,391,620 | $10,387,796 |
Charleys Fund Inc Great Barrington, MA | $5,463,767 | $1,781,625 |
Orthopaedic Foundation For Active Lifestyles Inc Stamford, CT | $3,883,565 | $1,438,636 |
Audre Lorde Project Inc Brooklyn, NY | $3,205,898 | $2,814,295 |
Foundation Of Orthopedics And Complex Spine Inc Garden City, NY | $1,400,092 | $518,962 |
American Spinal Research Organization Incorporated Niagara Falls, NY | $1,635 | $244,758 |
Massachusetts Society Of Clinical Onocologists Inc Waltham, MA | $1,146,107 | $245,160 |
Institute For Sports Medicine Research Niskayuna, NY | $314,906 | $0 |
The International Thyroid Cancer Study Group Inc Yorkville, NY | $3,897,331 | $370,669 |
American Society For Peripheral Nerve Beverly, MA | $725,004 | $134,908 |
Empower Spinal Cord Injury Incorporated Waltham, MA | $142,498 | $0 |