Karen Wyckoff Rein In Sarcoma

OUR THREE-PRONGED MISSION: EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMAS, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCERS.

REIN IN SARCOMA (RIS) WAS STARTED IN 2001 BY KAREN WYCKOFF, A 25-YEAR-OLD SYNOVIAL SARCOMA PATIENT. AS SHE FOUGHT A RARE CANCER, SHE FOUND THAT THERE WERE THREE THINGS THAT SHE THOUGHT NEEDED DOING TO INCREASE THE QUALITY OF LIFE AND THE ODDS OF SURVIVAL FOR ALL SARCOMA PATIENTS. AS SHE STARTED THE ORGANIZATION, SHE STATED THE MISSION: "WE ARE DEDICATED TO EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMA, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCERS." * FINDING CURES FOR SARCOMA CANCERS: O RIS HAS WORKED WITH THE DOCTORS AND THE MEDICAL SCHOOL AT THE UNIVERSITY OF MINNESOTA. RIS HAS FUNDED OVER 2M IN INNOVATIVE, COLLABORATIVE AND HIGH IMPACT RESEARCH. O SEVENTY-SEVEN SARCOMA RESEARCH GRANTS HAVE BEEN FUNDED. RIS HAS SERVED PATIENTS AT MAYO CLINIC AND CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA. THESE THREE INSTITUTIONS ARE SERVING THE MAJORITY OF SARCOMA PATIENTS IN MINNESOTA. * EDUCATION: O RIS WORKED TO GET SARCOMA INTO THE CURRICULUM AT ALL THREE MEDICAL SCHOOLS IN MINNESOTA. FOR THE LAST TWELVE YEARS, RIS HAS FUNDED RIS JAN MAUDLIN SARCOMA SCHOLARS AT THE UNIVERSITY OF MINNESOTA MEDICAL SCHOOL AND MAYO MEDICAL SCHOOL. THEY PLAN EDUCATIONAL PROGRAMS FOR THEIR PEERS AND THE PUBLIC. SIX RIS SARCOMA SCHOLARS HAVE BEEN SELECTED FOR THE 2021-2022 ACADEMIC YEAR. O THIS MEDICAL STUDENT SARCOMA EDUCATION PROGRAM HAS EXPANDED TO THE MEDICAL COLLEGE OF WISCONSIN IN MILWAUKEE THIS ACADEMIC YEAR AND BEGINS AT THE UNIVERSITY OF WISCONSIN: MADISON IN THE FALL OF 2022. O RIS'S MEDICAL ADVISORY BOARD HAS HELPED TO PRODUCE EDUCATIONAL MATERIALS FOR MEDICAL PERSONNEL AND THE PUBLIC. O RIS SENDS FREE SARCOMA PATIENT EDUCATION GUIDEBOOKS TO PATIENTS NATIONWIDE. RIS SENDS GUIDEBOOKS TO THE MAYO CLINIC, THE UNIVERSITY OF MINNESOTA, CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA AND DUKE. THE PATIENT GUIDEBOOK WAS BASED ON A 2004 SIMILAR PUBLICATION OF THE AMSCHWAND FOUNDATION. RIS PUBLISHED THE EIGHTH EDITION LAST FALL. O THE REIN IN SARCOMA YOUTUBE CHANNEL HOUSES SEVERAL PATIENT STORIES AS WELL AS EDUCATIONAL VIDEOS. * PATIENT AND FAMILY SUPPORT O EACH YEAR, RIS HAS THREE PATIENT SUPPORT ACTIVITIES A YEAR, INCLUDING OUR ANNUAL SARCOMA FAMILY PICNIC O RIS PROVIDES PEER TO PEER MENTORING, O PATIENT SUPPORT BAGS FOR HOSPITALIZED PATIENTS, AND O ACTIVE SOCIAL MEDIA SUPPORT. ALL OF THE ABOVE-MENTIONED ACTIVITIES HAVE EVOLVED FROM THE IDEAS FIRST SET OUT BY KAREN. WE HAVE BEEN AN ALL-VOLUNTEER ORGANIZATION, ADDING AN EXECUTIVE DIRECTOR IN 2017. RIS IS THE LARGEST AND BEST-KNOWN SARCOMA FOUNDATION IN THE MIDWEST. WITH ITS THREE-PRONGED COMMITMENT TO SARCOMA RESEARCH, SUPPORT, AND EDUCATION, THE FOUNDATION HAS REACHED THOUSANDS OF PEOPLE AND RAISED OVER $2 MILLION FOR SARCOMA CANCER RESEARCH.

REIN IN SARCOMA (RIS) WAS STARTED IN 2001 BY KAREN WYCKOFF, A 25-YEAR-OLD SYNOVIAL SARCOMA PATIENT. AS SHE FOUGHT A RARE CANCER, SHE FOUND THAT THERE WERE THREE THINGS THAT SHE THOUGHT NEEDED DOING TO INCREASE THE QUALITY OF LIFE AND THE ODDS OF SURVIVAL FOR ALL SARCOMA PATIENTS. AS SHE STARTED THE ORGANIZATION, SHE STATED THE MISSION: "WE ARE DEDICATED TO EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMA, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCERS." * FINDING CURES FOR SARCOMA CANCERS: O RIS HAS WORKED WITH THE DOCTORS AND THE MEDICAL SCHOOL AT THE UNIVERSITY OF MINNESOTA. RIS HAS FUNDED OVER 2M IN INNOVATIVE, COLLABORATIVE AND HIGH IMPACT RESEARCH. O SEVENTY-SEVEN SARCOMA RESEARCH GRANTS HAVE BEEN FUNDED. RIS HAS SERVED PATIENTS AT MAYO CLINIC AND CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA. THESE THREE INSTITUTIONS ARE SERVING THE MAJORITY OF SARCOMA PATIENTS IN MINNESOTA. * EDUCATION: O RIS WORKED TO GET SARCOMA INTO THE CURRICULUM AT ALL THREE MEDICAL SCHOOLS IN MINNESOTA. FOR THE LAST TWELVE YEARS, RIS HAS FUNDED RIS JAN MAUDLIN SARCOMA SCHOLARS AT THE UNIVERSITY OF MINNESOTA MEDICAL SCHOOL AND MAYO MEDICAL SCHOOL. THEY PLAN EDUCATIONAL PROGRAMS FOR THEIR PEERS AND THE PUBLIC. SIX RIS SARCOMA SCHOLARS HAVE BEEN SELECTED FOR THE 2021-2022 ACADEMIC YEAR. O THIS MEDICAL STUDENT SARCOMA EDUCATION PROGRAM HAS EXPANDED TO THE MEDICAL COLLEGE OF WISCONSIN IN MILWAUKEE THIS ACADEMIC YEAR AND BEGINS AT THE UNIVERSITY OF WISCONSIN: MADISON IN THE FALL OF 2022. O RIS'S MEDICAL ADVISORY BOARD HAS HELPED TO PRODUCE EDUCATIONAL MATERIALS FOR MEDICAL PERSONNEL AND THE PUBLIC. O RIS SENDS FREE SARCOMA PATIENT EDUCATION GUIDEBOOKS TO PATIENTS NATIONWIDE. RIS SENDS GUIDEBOOKS TO THE MAYO CLINIC, THE UNIVERSITY OF MINNESOTA, CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA AND DUKE. THE PATIENT GUIDEBOOK WAS BASED ON A 2004 SIMILAR PUBLICATION OF THE AMSCHWAND FOUNDATION. RIS PUBLISHED THE EIGHTH EDITION LAST FALL. O THE REIN IN SARCOMA YOUTUBE CHANNEL HOUSES SEVERAL PATIENT STORIES AS WELL AS EDUCATIONAL VIDEOS. * PATIENT AND FAMILY SUPPORT O EACH YEAR, RIS HAS THREE PATIENT SUPPORT ACTIVITIES A YEAR, INCLUDING OUR ANNUAL SARCOMA FAMILY PICNIC O RIS PROVIDES PEER TO PEER MENTORING, O PATIENT SUPPORT BAGS FOR HOSPITALIZED PATIENTS, AND O ACTIVE SOCIAL MEDIA SUPPORT. ALL OF THE ABOVE-MENTIONED ACTIVITIES HAVE EVOLVED FROM THE IDEAS FIRST SET OUT BY KAREN. WE HAVE BEEN AN ALL-VOLUNTEER ORGANIZATION, ADDING AN EXECUTIVE DIRECTOR IN 2017. RIS IS THE LARGEST AND BEST-KNOWN SARCOMA FOUNDATION IN THE MIDWEST. WITH ITS THREE-PRONGED COMMITMENT TO SARCOMA RESEARCH, SUPPORT, AND EDUCATION, THE FOUNDATION HAS REACHED THOUSANDS OF PEOPLE AND RAISED OVER $2 MILLION FOR SARCOMA CANCER RESEARCH.