Karen Wyckoff Rein In Sarcoma, operating under the name Rein in Sarcoma, is located in Fridley, MN. The organization was established in 2004. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. As of 12/2023, Rein in Sarcoma employed 6 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rein in Sarcoma is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Rein in Sarcoma generated $606.4k in total revenue. This represents relatively stable growth, over the past 5 years the organization has increased revenue by an average of 1.1% each year. All expenses for the organization totaled $554.5k during the year ending 12/2023. While expenses have increased by 3.1% per year over the past 5 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2020, Rein in Sarcoma has awarded 25 individual grants totaling $858,000. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
OUR THREE-PRONGED MISSION: EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMAS, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
REIN IN SARCOMA (RIS) WAS STARTED BY KAREN WYCKOFF, A 25-YEAR-OLD SYNOVIAL SARCOMA PATIENT. AS SHE FOUGHT THIS RARE CANCER, SHE FOUND THAT THERE WERE THREE THINGS THAT SHE THOUGHT NEEDED DOING TO INCREASE THE QUALITY OF LIFE AND ODDS OF SURVIVAL FOR ALL SARCOMA PATIENTS. AS SHE STARTED THE ORGANIZATION, SHE DEVELOPED THE MISSION AS IT STILL REMAINS TODAY: WE ARE DEDICATED TO EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMA, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCER. FINDING CURES FOR SARCOMA CANCER: RIS HAS PARTNERED WITH MANY TOP-NOTCH RESEARCH INSTITUTIONS INCLUDING: UNIVERSITY OF MINNESOTA, MAYO CLINIC, CHILDREN'S MINNESOTA, UNIVERSITY OF CALGARY, CASE WESTERN RESERVE AND UNIVERSITY OF MICHIGAN. RIS HAS FUNDED MORE THAN $2.5M IN HIGH IMPACT AND COLLABORATIVE RESEARCH. EIGHTY SEVEN RESEARCH FUNDING AWARDS HAVE BEEN MADE TO DATE. EDUCATION: RIS HAS ESTABLISHED AND EXPANDED ITS SARCOMA SCHOLAR PROGRAM TO EDUCATE MEDICAL STUDENTS AND ADVANCED PRACTICE STUDENTS ABOUT SARCOMA. THIS PROGRAM BEGAN IN 2009 WITH 2 SCHOLARS PARTICIPATING FROM THE UNIVERSITY OF MINNESOTA AND HAS NOW GROWN TO 14 SCHOLARS FROM ACROSS THE COUNTRY IN 2024, PARTICIPATING FROM UNIVERSITY OF MINNESOTA, MAYO CLINIC ALIX SCHOOL OF MEDICINE, UNIVERSITY OF FLORIDA, UNIVERSITY OF MICHIGAN, UNIVERSITY OF IOWA, WINONA STATE UNIVERSITY, MEDICAL SCHOOL OF WISCONSIN AND UNIVERSITY OF WISCONSIN-MADISON. SCHOLARS EDUCATE THEIR PEERS AND PUBLIC ABOUT SARCOMA, COMPLETE SARCOMA RELATED PROJECTS, AND GO THROUGH A YEAR-LONG SARCOMA EDUCATION PROGRAM OFFERED BY RIS AND SARCOMA EXPERTS, SPECIALISTS AND MENTORS. IN ADDITION, RIS PROVIDES FREE PATIENT EDUCATION SARCOMA GUIDEBOOKS TO NEWLY DIAGNOSED PATIENTS AND THEIR CAREGIVERS. GUIDEBOOKS ARE ALSO SENT TO SARCOMA CENTERS ACROSS THE NATION FOR DISTRIBUTION AND IS AVAILABLE FOR FREE DOWNLOAD ON THE RIS WEBSITE. THE 9TH EDITION GUIDEBOOK WAS COMPLETED IN 2024. OTHER EDUCATIONAL ACTIVITIES INCLUDE RIS PARTICIPATION IN ANNUAL SARCOMA RELATED CONFERENCES, PRESENTING AND TABLING OPPORTUNITIES TO INCREASE EDUCATION. RIS HAS A YOUTUBE CHANNEL THAT HOUSES PATIENT STORIES AND EDUCATIONAL VIDEOS. PATIENT AND FAMILY SUPPORT: EACH YEAR, RIS HOLDS A PARTY IN THE PARK EVENT WHICH IS FREE TO SARCOMA PATIENTS, FAMILY MEMBERS AND THOSE WHO HAVE LOST A LOVED ONE TO SARCOMA. OTHER PATIENT AND FAMILY SUPPORT ACTIVITIES INCLUDE A WINTER GATHERING FOR PATIENTS TO COME TOGETHER AND LEARN ABOUT A NEW SARCOMA TOPIC AND PARTICIPATE IN A REFLECTION ACTIVITY. THE ANNUAL RIS REMEMBERS GATHERING BRINGS TOGETHER THOSE WHO HAVE LOST A LOVED ONE TO SARCOMA, AND OFFERS A TIME TO REFLECT AND HONOR THAT LOVED ONE. RIS ALSO PROVIDES PEER TO PEER MENTORSHIP FROM OTHER SARCOMA SURVIVORS, TOTE BAGS OF HOPE FILLED WITH ITEMS FOR NEWLY DIAGNOSED AND/OR HOSPITALIZED PATIENTS, AN ACTIVE SOCIAL MEDIA GROUP FOR SARCOMA PATIENTS AND LOVED ONES, MICROGRANTS FOR PATIENTS IN NEED OF FINANCIAL SUPPORT DURING TREATMENT AND AN IN PERSON MONTHLY SUPPORT GROUP. REIN IN SARCOMA IS THE LARGEST AND MOST WELL-KNOWN SARCOMA FOUNDATION IN THE MIDWEST.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Lachelle Semanko Executive Director | Officer | 40 | $83,387 |
Janelle Calhoun Executive Director | Officer | 40 | $31,375 |
Scott Okuno MD Board Member | Trustee | 1 | $0 |
Colin Ryan Board Member | Trustee | 1 | $0 |
Maureen Anderson Dnp Board Member | Trustee | 1 | $0 |
Laura Gagne Board Member | Trustee | 1 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $187,392 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $401,800 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $589,192 |
Total Program Service Revenue | $0 |
Investment income | $21,052 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | -$3,391 |
Net Income from Gaming Activities | -$499 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $606,354 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $61,000 |
Grants and other assistance to domestic individuals. | $25 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $114,762 |
Compensation of current officers, directors, key employees. | $49,042 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $158,612 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $16,547 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $11,247 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $95,052 |
Advertising and promotion | $3,041 |
Office expenses | $31,006 |
Information technology | $27,682 |
Royalties | $0 |
Occupancy | $4,000 |
Travel | $2,984 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $7,707 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $7,641 |
All other expenses | $5,728 |
Total functional expenses | $554,483 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $580,569 |
Savings and temporary cash investments | $236,645 |
Pledges and grants receivable | $7,687 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $718 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $350,336 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $1,175,955 |
Accounts payable and accrued expenses | $15,280 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $15,280 |
Net assets without donor restrictions | $587,102 |
Net assets with donor restrictions | $573,573 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $1,175,955 |
Over the last fiscal year, Karen Wyckoff Rein In Sarcoma has awarded $55,000 in support to 4 organizations.
Grant Recipient | Amount |
---|---|
UNIVERSITY OF MINNESOTA PURPOSE: Educate medical students about Sarcoma who in turn educate peers with long lasting impact. | $9,000 |
CHILDREN'S HOSPITALS AND CLINICS PURPOSE: Educate medical students about Sarcoma who in turn educate peers with long lasting impact. | $15,000 |
MAYO FOUNDATION FOR MEDICAL EDUCATION AND RESEARCH PURPOSE: Educate medical students about Sarcoma who in turn educate peers with long lasting impact. | $6,000 |
MAYO CLINIC PURPOSE: Sarcoma Research | $25,000 |