Karen Wyckoff Rein In Sarcoma

Organization Overview

Karen Wyckoff Rein In Sarcoma, operating under the name Rein in Sarcoma, is located in Fridley, MN. The organization was established in 2004. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Rein in Sarcoma is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Rein in Sarcoma generated $950.5k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 20.4% each year . All expenses for the organization totaled $529.4k during the year ending 12/2021. While expenses have increased by 16.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2020, Rein in Sarcoma has awarded 15 individual grants totaling $463,000. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

OUR THREE-PRONGED MISSION: EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMAS, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCERS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

REIN IN SARCOMA (RIS) WAS STARTED IN 2001 BY KAREN WYCKOFF, A 25-YEAR-OLD SYNOVIAL SARCOMA PATIENT. AS SHE FOUGHT A RARE CANCER, SHE FOUND THAT THERE WERE THREE THINGS THAT SHE THOUGHT NEEDED DOING TO INCREASE THE QUALITY OF LIFE AND THE ODDS OF SURVIVAL FOR ALL SARCOMA PATIENTS. AS SHE STARTED THE ORGANIZATION, SHE STATED THE MISSION: "WE ARE DEDICATED TO EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMA, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCERS." * FINDING CURES FOR SARCOMA CANCERS: O RIS HAS WORKED WITH THE DOCTORS AND THE MEDICAL SCHOOL AT THE UNIVERSITY OF MINNESOTA. RIS HAS FUNDED OVER 2M IN INNOVATIVE, COLLABORATIVE AND HIGH IMPACT RESEARCH. O SEVENTY-SEVEN SARCOMA RESEARCH GRANTS HAVE BEEN FUNDED. RIS HAS SERVED PATIENTS AT MAYO CLINIC AND CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA. THESE THREE INSTITUTIONS ARE SERVING THE MAJORITY OF SARCOMA PATIENTS IN MINNESOTA. * EDUCATION: O RIS WORKED TO GET SARCOMA INTO THE CURRICULUM AT ALL THREE MEDICAL SCHOOLS IN MINNESOTA. FOR THE LAST TWELVE YEARS, RIS HAS FUNDED RIS JAN MAUDLIN SARCOMA SCHOLARS AT THE UNIVERSITY OF MINNESOTA MEDICAL SCHOOL AND MAYO MEDICAL SCHOOL. THEY PLAN EDUCATIONAL PROGRAMS FOR THEIR PEERS AND THE PUBLIC. SIX RIS SARCOMA SCHOLARS HAVE BEEN SELECTED FOR THE 2021-2022 ACADEMIC YEAR. O THIS MEDICAL STUDENT SARCOMA EDUCATION PROGRAM HAS EXPANDED TO THE MEDICAL COLLEGE OF WISCONSIN IN MILWAUKEE THIS ACADEMIC YEAR AND BEGINS AT THE UNIVERSITY OF WISCONSIN: MADISON IN THE FALL OF 2022. O RIS'S MEDICAL ADVISORY BOARD HAS HELPED TO PRODUCE EDUCATIONAL MATERIALS FOR MEDICAL PERSONNEL AND THE PUBLIC. O RIS SENDS FREE SARCOMA PATIENT EDUCATION GUIDEBOOKS TO PATIENTS NATIONWIDE. RIS SENDS GUIDEBOOKS TO THE MAYO CLINIC, THE UNIVERSITY OF MINNESOTA, CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA AND DUKE. THE PATIENT GUIDEBOOK WAS BASED ON A 2004 SIMILAR PUBLICATION OF THE AMSCHWAND FOUNDATION. RIS PUBLISHED THE EIGHTH EDITION LAST FALL. O THE REIN IN SARCOMA YOUTUBE CHANNEL HOUSES SEVERAL PATIENT STORIES AS WELL AS EDUCATIONAL VIDEOS. * PATIENT AND FAMILY SUPPORT O EACH YEAR, RIS HAS THREE PATIENT SUPPORT ACTIVITIES A YEAR, INCLUDING OUR ANNUAL SARCOMA FAMILY PICNIC O RIS PROVIDES PEER TO PEER MENTORING, O PATIENT SUPPORT BAGS FOR HOSPITALIZED PATIENTS, AND O ACTIVE SOCIAL MEDIA SUPPORT. ALL OF THE ABOVE-MENTIONED ACTIVITIES HAVE EVOLVED FROM THE IDEAS FIRST SET OUT BY KAREN. WE HAVE BEEN AN ALL-VOLUNTEER ORGANIZATION, ADDING AN EXECUTIVE DIRECTOR IN 2017. RIS IS THE LARGEST AND BEST-KNOWN SARCOMA FOUNDATION IN THE MIDWEST. WITH ITS THREE-PRONGED COMMITMENT TO SARCOMA RESEARCH, SUPPORT, AND EDUCATION, THE FOUNDATION HAS REACHED THOUSANDS OF PEOPLE AND RAISED OVER $2 MILLION FOR SARCOMA CANCER RESEARCH.


REIN IN SARCOMA (RIS) WAS STARTED IN 2001 BY KAREN WYCKOFF, A 25-YEAR-OLD SYNOVIAL SARCOMA PATIENT. AS SHE FOUGHT A RARE CANCER, SHE FOUND THAT THERE WERE THREE THINGS THAT SHE THOUGHT NEEDED DOING TO INCREASE THE QUALITY OF LIFE AND THE ODDS OF SURVIVAL FOR ALL SARCOMA PATIENTS. AS SHE STARTED THE ORGANIZATION, SHE STATED THE MISSION: "WE ARE DEDICATED TO EDUCATING THE PUBLIC AND MEDICAL COMMUNITY ABOUT SARCOMA, SUPPORTING SARCOMA PATIENTS AND THEIR LOVED ONES, AND FUNDING RESEARCH DIRECTED TOWARD DEVELOPING NEW TREATMENTS AND FINDING A CURE FOR SARCOMA CANCERS." * FINDING CURES FOR SARCOMA CANCERS: O RIS HAS WORKED WITH THE DOCTORS AND THE MEDICAL SCHOOL AT THE UNIVERSITY OF MINNESOTA. RIS HAS FUNDED OVER 2M IN INNOVATIVE, COLLABORATIVE AND HIGH IMPACT RESEARCH. O SEVENTY-SEVEN SARCOMA RESEARCH GRANTS HAVE BEEN FUNDED. RIS HAS SERVED PATIENTS AT MAYO CLINIC AND CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA. THESE THREE INSTITUTIONS ARE SERVING THE MAJORITY OF SARCOMA PATIENTS IN MINNESOTA. * EDUCATION: O RIS WORKED TO GET SARCOMA INTO THE CURRICULUM AT ALL THREE MEDICAL SCHOOLS IN MINNESOTA. FOR THE LAST TWELVE YEARS, RIS HAS FUNDED RIS JAN MAUDLIN SARCOMA SCHOLARS AT THE UNIVERSITY OF MINNESOTA MEDICAL SCHOOL AND MAYO MEDICAL SCHOOL. THEY PLAN EDUCATIONAL PROGRAMS FOR THEIR PEERS AND THE PUBLIC. SIX RIS SARCOMA SCHOLARS HAVE BEEN SELECTED FOR THE 2021-2022 ACADEMIC YEAR. O THIS MEDICAL STUDENT SARCOMA EDUCATION PROGRAM HAS EXPANDED TO THE MEDICAL COLLEGE OF WISCONSIN IN MILWAUKEE THIS ACADEMIC YEAR AND BEGINS AT THE UNIVERSITY OF WISCONSIN: MADISON IN THE FALL OF 2022. O RIS'S MEDICAL ADVISORY BOARD HAS HELPED TO PRODUCE EDUCATIONAL MATERIALS FOR MEDICAL PERSONNEL AND THE PUBLIC. O RIS SENDS FREE SARCOMA PATIENT EDUCATION GUIDEBOOKS TO PATIENTS NATIONWIDE. RIS SENDS GUIDEBOOKS TO THE MAYO CLINIC, THE UNIVERSITY OF MINNESOTA, CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA AND DUKE. THE PATIENT GUIDEBOOK WAS BASED ON A 2004 SIMILAR PUBLICATION OF THE AMSCHWAND FOUNDATION. RIS PUBLISHED THE EIGHTH EDITION LAST FALL. O THE REIN IN SARCOMA YOUTUBE CHANNEL HOUSES SEVERAL PATIENT STORIES AS WELL AS EDUCATIONAL VIDEOS. * PATIENT AND FAMILY SUPPORT O EACH YEAR, RIS HAS THREE PATIENT SUPPORT ACTIVITIES A YEAR, INCLUDING OUR ANNUAL SARCOMA FAMILY PICNIC O RIS PROVIDES PEER TO PEER MENTORING, O PATIENT SUPPORT BAGS FOR HOSPITALIZED PATIENTS, AND O ACTIVE SOCIAL MEDIA SUPPORT. ALL OF THE ABOVE-MENTIONED ACTIVITIES HAVE EVOLVED FROM THE IDEAS FIRST SET OUT BY KAREN. WE HAVE BEEN AN ALL-VOLUNTEER ORGANIZATION, ADDING AN EXECUTIVE DIRECTOR IN 2017. RIS IS THE LARGEST AND BEST-KNOWN SARCOMA FOUNDATION IN THE MIDWEST. WITH ITS THREE-PRONGED COMMITMENT TO SARCOMA RESEARCH, SUPPORT, AND EDUCATION, THE FOUNDATION HAS REACHED THOUSANDS OF PEOPLE AND RAISED OVER $2 MILLION FOR SARCOMA CANCER RESEARCH.


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Board, Officers & Key Employees

Name (title)Compensation
Janelle Calhoun
Executive Director
$85,333
Valerie Lopez Torres
Board Member
$6,240
Blake Hastings
President
$0
Eric Lien
Vice President
$0
Mitch Atherton
Secretary
$0
Thomas Mccarthy
Treasurer
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$160,365
Related organizations$0
Government grants $18,000
All other contributions, gifts, grants, and similar amounts not included above$782,552
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$960,917
Total Program Service Revenue$0
Investment income $1,844
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$12,517
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $305
Miscellaneous Revenue$0
Total Revenue $950,549

Grants Awarded

Over the last fiscal year, Karen Wyckoff Rein In Sarcoma has awarded $264,000 in support to 11 organizations.

Grant RecipientAmount

CASE WESTERN RESERVE UNIVERSITY

Org PageRecipient Profile

Cleveland, OH

PURPOSE: Sarcoma Research

$54,000

UNIVERSITY OF MINNESOTA

Org PageRecipient Profile

Minneapolis, MN

PURPOSE: Sarcoma Research

$50,000

UNIVERSITY OF MINNESOTA

Org PageRecipient Profile

Minneapolis, MN

PURPOSE: Sarcoma Research

$50,000

Rochester, MN

PURPOSE: Sarcoma Research

$25,000

Rochester, MN

PURPOSE: Sarcoma Research

$25,000

CHILDREN'S HOSPITALS AND CLINICS

Org PageRecipient Profile

Minneapolis, MN

PURPOSE: Sarcoma Research

$15,000
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 10 grants that Karen Wyckoff Rein In Sarcoma has recieved totaling $275,464.

Awarding OrganizationAmount
Peggy And Eric Johnson Foundation

Wilmington, DE

PURPOSE: KASEY ALTMAN RESEARCH FUND

$100,000
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$61,250
National Christian Charitable Foundation Inc

Alpharetta, GA

PURPOSE: SUPPORT

$42,720
Saint Paul & Minnesota Foundation

Saint Paul, MN

PURPOSE: MULTIPLE GRANTS FOR MULTIPLE PURPOSES

$30,000
The Woody Charitable Foundation

San Diego, CA

PURPOSE: OPERATING EXPENSE GRANT

$15,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$9,901
View Grant Recipient Profile

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