National Down Syndrome Society
- Assets
- $13.1m
- Revenue
- $3.7m
- Investments
- $0.0
- Employees
- 29
- Location
- Washington, DC
- Founding
- 08/1979
- Data as of
- 06/2022
- EIN
- 13-2992567
Organization Overview
National Down Syndrome Society is located in Washington, DC. The organization was established in 1979. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2022, National Down Syndrome Society employed 29 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Down Syndrome Society is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, National Down Syndrome Society generated $3.7m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.1% each year. All expenses for the organization totaled $3.4m during the year ending 06/2022. While expenses have increased by 5.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE NATIONAL DOWN SYNDROME SOCIETY IS THE LEADING HUMAN RIGHTS ORGANIZATION FOR ALL INDIVIDUALS WITH DOWN SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
COMMUNITY ENGAGEMENT - SEE SCHEDULE O
RESOURCES AND SUPPORT - SEE SCHEDULE O
ADVOCACY AND PUBLIC POLICY - SEE SCHEDULE O
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kandi Pickard Executive Dir. | Officer | 40 | $161,797 |
Sara Goldberg Sr. Director | 40 | $90,455 | |
Tiffany Barfield Chairman | OfficerTrustee | 1.5 | $0 |
Heather Lavallee Secretary | OfficerTrustee | 1.5 | $0 |
Anthony J Gostkowski Treasurer | OfficerTrustee | 1.5 | $0 |
Carlo P Frappolli Vice President | OfficerTrustee | 1.5 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
The Wings Group Rent And Maintenance | 6/29/22 | $121,523 |
Cea Scholtes And Associates Cfo | 6/29/22 | $115,102 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $89,429 |
| Membership dues | $0 |
| Fundraising events | $49,596 |
| Related organizations | $0 |
| Government grants | $212,805 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,361,412 |
| Noncash contributions included in lines 1a–1f | $63,166 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,713,242 |
| Total Program Service Revenue | $169,793 |
| Investment income | $334,952 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,306 |
| Net Income from Fundraising Events | $414,033 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,651,955 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $62,965 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $175,389 |
| Compensation of current officers, directors, key employees. | $11,088 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,155,413 |
| Pension plan accruals and contributions | $34,089 |
| Other employee benefits | $81,513 |
| Payroll taxes | $100,718 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $48,947 |
| Fees for services: Accounting | $158,584 |
| Fees for services: Lobbying | $24,000 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $28,609 |
| Fees for services: Other | $369,441 |
| Advertising and promotion | $0 |
| Office expenses | $23,405 |
| Information technology | $88,652 |
| Royalties | $0 |
| Occupancy | $126,039 |
| Travel | $181,699 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $138,996 |
| Interest | $0 |
| Payments to affiliates | $28,168 |
| Depreciation, depletion, and amortization | $7,002 |
| Insurance | $8,386 |
| All other expenses | $131,122 |
| Total functional expenses | $3,391,372 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $372,315 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $41,296 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $141,453 |
| Net Land, buildings, and equipment | $18,764 |
| Investments—publicly traded securities | $12,485,685 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $17,197 |
| Total assets | $13,076,710 |
| Accounts payable and accrued expenses | $426,769 |
| Grants payable | $0 |
| Deferred revenue | $112,508 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $539,277 |
| Net assets without donor restrictions | $11,035,065 |
| Net assets with donor restrictions | $1,502,368 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $13,076,710 |
Grants Awarded
Over the last fiscal year, National Down Syndrome Society has awarded $29,064 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
Washington, DC PURPOSE: TO SUPPORT CPSD COALITION AND LEADERSHIP CAPACITY | $19,064 |
La Jolla, CA PURPOSE: TO SUPPORT 21 LAB | $10,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that National Down Syndrome Society has recieved totaling $1,000.
| Awarding Organization | Amount |
|---|---|
Audra Zuckerman And Mitchell Rubinfoundation Inc Pound Ridge, NY PURPOSE: CHARITABLE DONATION | $1,000 |
Endowment Analysis
| Beg. Balance | $10,828,109 |
| Earnings | -$1,573,539 |
| Other Expense | $54,199 |
| Ending Balance | $9,200,371 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
National Down Syndrome Society Washington, DC | $13,076,710 | $3,651,955 |
Downs Syndrome Association Of Greater Richmond Inc Richmond, VA | $450,527 | $389,056 |
Down Syndrome Association Of Northern Virginia Oakton, VA | $404,197 | $269,507 |
Down Syndrome Association Of Hampton Roads Hampton, VA | $90,496 | $0 |
Down Syndrome Association Of Roanoke Roanoke, VA | $65,156 | $0 |