National Down Syndrome Society
- Assets
- $13.5m
- Revenue
- $3.4m
- Investments
- $0.0
- Employees
- 29
- Location
- Washington, DC
- Founding
- 08/1979
- Data as of
- 06/2023
- EIN
- 13-2992567
Organization Overview
National Down Syndrome Society is located in Washington, DC. The organization was established in 1979. According to its NTEE Classification (G25) the organization is classified as: Down Syndrome, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 06/2023, National Down Syndrome Society employed 29 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Down Syndrome Society is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, National Down Syndrome Society generated $3.4m in total revenue. This represents relatively stable growth, over the past 4 years the organization has increased revenue by an average of 1.8% each year. All expenses for the organization totaled $4.2m during the year ending 06/2023. While expenses have increased by 10.8% per year over the past 4 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE NATIONAL DOWN SYNDROME SOCIETY EMPOWERS INDIVIDUALS WITH DOWN SYNDROME AND THEIR FAMILIES BY DRIVING POLICY CHANGE, PROVIDING RESOURCES, ENGAGING WITH LOCAL COMMUNITIES, AND SHIFTING PUBLIC PERCEPTIONS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
COMMUNITY ENGAGEMENT - SEE SCHEDULE O
ADVOCACY AND PUBLIC POLICY - SEE SCHEDULE O
RESOURCES AND SUPPORT - SEE SCHEDULE O
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kandi Pickard President & CEO | Officer | 40 | $168,353 |
Sara Goldberg VP Strategic Dev | 40 | $88,975 | |
Tiffany Barfield Chairman | OfficerTrustee | 1.5 | $0 |
Carlo P Frappolli Vice President | OfficerTrustee | 1.5 | $0 |
Janet Eissenstat Secretary | OfficerTrustee | 1.5 | $0 |
Anthony J Gostkowski Treasurer | OfficerTrustee | 1.5 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Ziegfeld Ballroom Venue | 6/29/23 | $157,480 |
Cea Scholtes And Associates Cfo | 6/29/23 | $135,306 |
Petrizzo Group Consulting | 6/29/23 | $138,826 |
Manhattan 8e41 Rent | 6/29/23 | $134,035 |
Hilton Arlington National Landing Venue | 6/29/23 | $120,915 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $107,310 |
| Membership dues | $0 |
| Fundraising events | $63,444 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,875,539 |
| Noncash contributions included in lines 1a–1f | $67,139 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,046,293 |
| Total Program Service Revenue | $246,749 |
| Investment income | $284,376 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $261,167 |
| Net Income from Fundraising Events | $402,932 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,354,289 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $41,234 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $205,853 |
| Compensation of current officers, directors, key employees. | $20,585 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,244,837 |
| Pension plan accruals and contributions | $23,926 |
| Other employee benefits | $108,248 |
| Payroll taxes | $106,740 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $66,371 |
| Fees for services: Accounting | $165,092 |
| Fees for services: Lobbying | $200,268 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $30,346 |
| Fees for services: Other | $386,576 |
| Advertising and promotion | $0 |
| Office expenses | $18,457 |
| Information technology | $110,551 |
| Royalties | $0 |
| Occupancy | $182,421 |
| Travel | $308,305 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $190,840 |
| Interest | $0 |
| Payments to affiliates | $191,989 |
| Depreciation, depletion, and amortization | $8,633 |
| Insurance | $7,213 |
| All other expenses | $109,437 |
| Total functional expenses | $4,160,847 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $417,641 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $14,901 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $281,484 |
| Net Land, buildings, and equipment | $17,981 |
| Investments—publicly traded securities | $12,003,147 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $768,708 |
| Total assets | $13,503,862 |
| Accounts payable and accrued expenses | $134,833 |
| Grants payable | $0 |
| Deferred revenue | $100,095 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $849,082 |
| Total liabilities | $1,084,010 |
| Net assets without donor restrictions | $10,803,534 |
| Net assets with donor restrictions | $1,616,318 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $13,503,862 |
Grants Awarded
Over the last fiscal year, National Down Syndrome Society has awarded $29,064 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
NATIONAL DISABILITY INSTITUTE PURPOSE: TO SUPPORT CPSD COALITION AND LEADERSHIP CAPACITY | $19,064 |
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO PURPOSE: TO SUPPORT 21 LAB | $10,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
National Down Syndrome Society Washington, DC | $13,503,862 | $3,354,289 |
Virginia Down Syndrome Association Richmond, VA | $506,236 | $202,469 |
Down Syndrome Association Of Northern Virginia Oakton, VA | $484,932 | $249,523 |
Down Syndrome Association Of Hampton Roads Hampton, VA | $9,552 | $0 |
Down Syndrome Association Of Roanoke Roanoke, VA | $66,883 | $0 |