Cystic Fibrosis Foundation
- Assets
- $5.7b
- Revenue
- $417.2m
- Investments
- $1.6b
- Employees
- 788
- Location
- Bethesda, MD
- Founding
- 11/1957
- Data as of
- 12/2021
- EIN
- 13-1930701
Organization Overview
Cystic Fibrosis Foundation is located in Bethesda, MD. The organization was established in 1957. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Cystic Fibrosis Foundation employed 788 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cystic Fibrosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cystic Fibrosis Foundation generated $417.2m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 15.9% each year . All expenses for the organization totaled $375.6m during the year ending 12/2021. While expenses have increased by 10.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Cystic Fibrosis Foundation has awarded 3,474 individual grants totaling $1,119,435,136. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE (CONTINUED ON SCH O) OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.
Describe the Organization's Program Activity:
SEE SCHEDULE O
SEE SCHEDULE O
SEE SCHEDULE O
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jack Mahler MD Chief Investment Officer | Officer | 40 | $1,401,121 |
Marc S Ginsky COO (until 8/2021) | Officer | 40 | $1,245,811 |
Eric Koehrsen Managing Director, Investments | 40 | $796,581 | |
Michael P Boyle MD President & CEO | OfficerTrustee | 40 | $744,103 |
Earl Lee Managing Director, Investments | 40 | $724,883 | |
William Skach MD Evp & Chief Scientific Officer | Officer | 40 | $653,362 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Pioneering Medicine (Cf) Llc Contracted Research | 12/30/21 | $12,000,000 |
Vertex Pharmaceuticals Inc Contracted Research | 12/30/21 | $10,000,000 |
Icagen Inc Contracted Research | 12/30/21 | $3,811,979 |
Microbion Corporation Contracted Research | 12/30/21 | $3,395,005 |
Matinas Biopharma Inc Contracted Research | 12/30/21 | $3,176,058 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $362,626 |
| Membership dues | $0 |
| Fundraising events | $45,841,986 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $40,331,547 |
| Noncash contributions included in lines 1a–1f | $4,318,566 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $86,536,159 |
| Total Program Service Revenue | $1,263,333 |
| Investment income | $62,205,751 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $12,463,153 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $243,956,157 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $10,300 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $417,237,551 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $163,803,073 |
| Grants and other assistance to domestic individuals. | $489,212 |
| Grants and other assistance to Foreign Orgs/Individuals | $14,037,371 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $8,407,208 |
| Compensation of current officers, directors, key employees. | $2,077,107 |
| Compensation to disqualified persons | $600,848 |
| Other salaries and wages | $75,118,912 |
| Pension plan accruals and contributions | $5,487,947 |
| Other employee benefits | $12,664,337 |
| Payroll taxes | $5,399,848 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $429,465 |
| Fees for services: Accounting | $217,841 |
| Fees for services: Lobbying | $682,260 |
| Fees for services: Fundraising | $176,400 |
| Fees for services: Investment Management | $2,643,636 |
| Fees for services: Other | $4,607,104 |
| Advertising and promotion | $12,260 |
| Office expenses | $3,658,046 |
| Information technology | $11,232,026 |
| Royalties | $0 |
| Occupancy | $6,373,917 |
| Travel | $174,212 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,967,221 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $2,726,418 |
| Insurance | $725,795 |
| All other expenses | $1,502,715 |
| Total functional expenses | $375,611,186 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $9,916 |
| Savings and temporary cash investments | $70,751,911 |
| Pledges and grants receivable | $8,629,010 |
| Accounts receivable, net | $23,159,403 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $305,397 |
| Prepaid expenses and deferred charges | $7,623,850 |
| Net Land, buildings, and equipment | $7,641,454 |
| Investments—publicly traded securities | $3,935,176,433 |
| Investments—other securities | $1,576,278,160 |
| Investments—program-related | $50,147,851 |
| Intangible assets | $0 |
| Other assets | $11,386,591 |
| Total assets | $5,691,109,976 |
| Accounts payable and accrued expenses | $40,322,607 |
| Grants payable | $231,895,234 |
| Deferred revenue | $2,261,826 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $274,479,667 |
| Net assets without donor restrictions | $5,398,556,832 |
| Net assets with donor restrictions | $18,073,477 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $5,691,109,976 |
Grants Awarded
Over the last fiscal year, Cystic Fibrosis Foundation has awarded $163,786,972 in support to 619 organizations.
| Grant Recipient | Amount |
|---|---|
Seattle, WA PURPOSE: CLINICAL RESEARCH | $8,041,150 |
Seattle, WA PURPOSE: CLINICAL RESEARCH CENTER | $6,361,303 |
Germantown, MD PURPOSE: PATIENT ASSISTANCE | $4,800,000 |
Concord, NH PURPOSE: QUALITY IMPROVEMENT | $3,531,889 |
Cincinnati, OH PURPOSE: CLINICAL CARE RESEARCH | $3,009,161 |
Seattle, WA PURPOSE: CLINICAL RESEARCH STUDY | $2,560,430 |
Grants Recieved
Over the last fiscal year, we have identified 21 grants that Cystic Fibrosis Foundation has recieved totaling $208,650.
| Awarding Organization | Amount |
|---|---|
Carlson Family Foundation Urbandale, IA PURPOSE: GENERAL FUND | $60,000 |
The Pruitt Foundation Inc Chantilly, VA PURPOSE: FURTHERANCE OF CHARITABLE PURPOSES | $30,000 |
Fatherree Foundation Henrico, VA PURPOSE: UNRESTRICTED | $30,000 |
Kee Ring Foundation Inc Tucson, AZ PURPOSE: TO PROVIDE SUPPORT FOR CYSTIC FIBROSIS | $25,000 |
Amfirst Foundation Birmingham, AL PURPOSE: GENERAL - NO RESTRICTIONS | $22,675 |
Cecil A And Mabel Lene Hamman Foundation Inc Evansville, IN PURPOSE: GENERAL OPERATING EXPENSE | $10,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Cystic Fibrosis Foundation Bethesda, MD | $5,691,109,976 | $417,237,551 |
March Of Dimes Inc Arlington, VA | $88,338,195 | $103,313,398 |
United Cerebral Palsy Of Cental Pennsylvania Inc Camp Hill, PA | $23,326,722 | $39,610,119 |
Children And Adult Disability And Educational Services Swarthmore, PA | $30,621,281 | $35,402,318 |
Easter Seals Serving Dc-Md-Va Inc Silver Spring, MD | $42,107,242 | $30,421,263 |
Blossom Philadelphia Philadelphia, PA | $11,542,334 | $13,231,911 |
Community Living And Support Services Inc Pittsburgh, PA | $14,170,450 | $10,575,358 |
Accessabilities Inc Butler, PA | $7,027,992 | $8,853,287 |
Community Care Connections Inc Butler, PA | $6,381,245 | $7,096,509 |
The Clinic For Special Children Inc Strasburg, PA | $14,596,490 | $7,339,577 |
United Cerebral Palsy Of Northeastern Pa Scranton, PA | $4,177,102 | $4,455,373 |
Lancaster Cleft Palate Clinic Lancaster, PA | $10,557,062 | $3,106,992 |