Cornelia De Lange Syndrome Foundation Inc is located in Avon, CT. The organization was established in 1982. According to its NTEE Classification (E80) the organization is classified as: Health (General & Financing), under the broad grouping of Health Care and related organizations. As of 12/2021, Cornelia DE Lange Syndrome Foundation Inc employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cornelia DE Lange Syndrome Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cornelia DE Lange Syndrome Foundation Inc generated $1.2m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.8% each year. All expenses for the organization totaled $921.4k during the year ending 12/2021. While expenses have increased by 3.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
FAMILY SUPPORT ORGANIZATION THAT EXISTS TO ENSURE EARLY AND ACCURATE DIAGNOSIS OF CDLS, PROMOTE RESEARCH INTO THE CAUSES AND MANIFESTATIONS, AND HELP PEOPLE WITH A DIAGNOSIS OF CDLS, AND OTHERS WITH SIMILAR CHARACTERISTICS, MAKE INFORMED DECISIONS THROUGHOUT THEIR LIVES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FAMILY SUPPORT PROGRAMS
PROFESSIONAL EDUCATION OUTREACH & AWARENESS
PUBLIC INFORMATION & EDUCATION
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Morrisette Royster Executive Dir. | Officer | 40 | $109,650 |
Mike Feehan Vice President | OfficerTrustee | 0 | $0 |
Eric Johnson Treasurer | OfficerTrustee | 0 | $0 |
Mike Christie President | OfficerTrustee | 0 | $0 |
Nicholas Jackson Secretary | OfficerTrustee | 0 | $0 |
Katherina Nikzah-Terhune Vice President | OfficerTrustee | 0 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $288,021 |
Related organizations | $0 |
Government grants | $188,149 |
All other contributions, gifts, grants, and similar amounts not included above | $639,404 |
Noncash contributions included in lines 1a–1f | $8,755 |
Total Revenue from Contributions, Gifts, Grants & Similar | $1,115,574 |
Total Program Service Revenue | $0 |
Investment income | $25,288 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $29,266 |
Net Income from Fundraising Events | $75,257 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $1,245,385 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $0 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $109,650 |
Compensation of current officers, directors, key employees. | $7,270 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $495,895 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $13,077 |
Payroll taxes | $47,921 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $0 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $0 |
Office expenses | $14,659 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $58,052 |
Travel | $0 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $6,404 |
Insurance | $6,649 |
All other expenses | $27,057 |
Total functional expenses | $921,430 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $382,071 |
Savings and temporary cash investments | $244,366 |
Pledges and grants receivable | $266,680 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $2,578 |
Prepaid expenses and deferred charges | $31,947 |
Net Land, buildings, and equipment | $18,304 |
Investments—publicly traded securities | $2,432,196 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $3,378,142 |
Accounts payable and accrued expenses | $66,273 |
Grants payable | $0 |
Deferred revenue | $782 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $67,055 |
Net assets without donor restrictions | $3,064,459 |
Net assets with donor restrictions | $246,628 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $3,378,142 |
Over the last fiscal year, we have identified 15 grants that Cornelia De Lange Syndrome Foundation Inc has recieved totaling $125,858.
Awarding Organization | Amount |
---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $46,261 |
American Legion Child Welfare Foundation Inc Indianapolis, IN PURPOSE: GENERAL SUPPORT | $26,500 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $15,350 |
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $10,550 |
Odyssey Group Foundation Stamford, CT PURPOSE: UNRESTRICTED GRANT FOR OPERATING COSTS | $10,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $5,404 |
Organization Name | Assets | Revenue |
---|---|---|
Massachusetts Mutual Employee Health Benefit Tr Springfield, MA | $6,593,525 | $93,603,894 |
Delta Dental Of Rhode Island Providence, RI | $133,512,428 | $64,453,283 |
International Union Of Operating Engineers Welfare Fund 478 Hamden, CT | $131,628,266 | $64,853,595 |
Dentcare Delivery Systems Inc Uniondale, NY | $23,820,779 | $55,088,779 |
Carepartners Of Connecticut Inc Canton, MA | $21,597,096 | $24,446,230 |
New York State United Teachers Member Benefits Catastrophe Major Latham, NY | $163,944,061 | $48,601,749 |
Retiree Health And Welfare Fund Of The Police Benevolent Association New York, NY | $171,668,298 | $54,323,145 |
Local 298 Health Benefit Fund I Valley Stream, NY | $21,565,304 | $24,797,848 |
Detectives Endowment Association Retirees Health Benefits Fund New York, NY | $3,766,379 | $20,182,671 |
F A Bartlett Tree Expert Co Veba Health Benefits Plan Stamford, CT | $425,363 | $16,893,698 |
Guardians Of The Sick Inc Brooklyn, NY | $5,970,531 | $15,096,609 |
Primary Care Development Corporation New York, NY | $131,968,263 | $17,167,926 |