Cornelia De Lange Syndrome Foundation Inc

Organization Overview

Cornelia De Lange Syndrome Foundation Inc is located in Avon, CT. The organization was established in 1982. According to its NTEE Classification (E80) the organization is classified as: Health (General & Financing), under the broad grouping of Health Care and related organizations. As of 12/2021, Cornelia DE Lange Syndrome Foundation Inc employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cornelia DE Lange Syndrome Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Cornelia DE Lange Syndrome Foundation Inc generated $1.2m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.8% each year. All expenses for the organization totaled $921.4k during the year ending 12/2021. While expenses have increased by 3.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

FAMILY SUPPORT ORGANIZATION THAT EXISTS TO ENSURE EARLY AND ACCURATE DIAGNOSIS OF CDLS, PROMOTE RESEARCH INTO THE CAUSES AND MANIFESTATIONS, AND HELP PEOPLE WITH A DIAGNOSIS OF CDLS, AND OTHERS WITH SIMILAR CHARACTERISTICS, MAKE INFORMED DECISIONS THROUGHOUT THEIR LIVES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

FAMILY SUPPORT PROGRAMS


PROFESSIONAL EDUCATION OUTREACH & AWARENESS


PUBLIC INFORMATION & EDUCATION


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Board, Officers & Key Employees

Name (title)Compensation
Morrisette Royster
Executive Dir.
$109,650
Mike Feehan
Vice President
$0
Eric Johnson
Treasurer
$0
Mike Christie
President
$0
Nicholas Jackson
Secretary
$0
Katherina Nikzah-Terhune
Vice President
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$288,021
Related organizations$0
Government grants $188,149
All other contributions, gifts, grants, and similar amounts not included above$639,404
Noncash contributions included in lines 1a–1f $8,755
Total Revenue from Contributions, Gifts, Grants & Similar$1,115,574
Total Program Service Revenue$0
Investment income $25,288
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $29,266
Net Income from Fundraising Events $75,257
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $1,245,385

Grants Recieved

Over the last fiscal year, we have identified 15 grants that Cornelia De Lange Syndrome Foundation Inc has recieved totaling $125,858.

Awarding OrganizationAmount
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$46,261
American Legion Child Welfare Foundation Inc

Indianapolis, IN

PURPOSE: GENERAL SUPPORT

$26,500
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$15,350
Ayco Charitable Foundation

Cohoes, NY

PURPOSE: MEDICAL / PUBLIC SERVICES

$10,550
Odyssey Group Foundation

Stamford, CT

PURPOSE: UNRESTRICTED GRANT FOR OPERATING COSTS

$10,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$5,404
View Grant Recipient Profile

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