Bleeding Disorders Alliance Illinoi S

Organization Overview

Bleeding Disorders Alliance Illinoi S is located in Chicago, IL. The organization was established in 1997. As of 12/2021, Bleeding Disorders Alliance Illinoi S employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Bleeding Disorders Alliance Illinoi S is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Bleeding Disorders Alliance Illinoi S generated $534.6k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 2.2% each year. All expenses for the organization totaled $466.6k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

THE ORGANIZATION ASSISTS HEMOPHILIACS AND THEIR FAMILIES TO MEET THEIR PHYSICAL, EMOTIONAL AND FINANCIAL NEEDS FOR TREATMENT AND CARE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

EDUCATION - THE ORGANIZATION PROVIDES SEVERAL EDUCATION PROGRAMS THROUGHOUT THE YEAR WHICH SUPPORT COMPREHENSIVE AND MEDICAL CARE. THE ORGANIZATION PUBLISHES A NEWSLETTER THREE TIMES A YEAR THAT REINFORCES THE ISSUES PRESENTED IN SPECIFIC EDUCATIONAL PRESENTATIONS WHICH INCLUDES POTENTIAL RESOURCES FOR HEMOPHILIACS TO UTILIZE.


SUMMER CAMP - THE ORGANIZATION CONDUCTS AN ANNUAL SUMMER CAMP FOR YOUTHS WITH HEMOPHILIA AND RELATED DISEASES.


ADVOCACY AND GENERAL PROGRAMS - THE ORGANIZATION'S PROGRAMS INCLUDE ON-GOING TRAINING FOR THE BLEEDING DISORDER COMMUNITY ON SELF-ADVOCACY AND AWARENESS ON CRITICAL ISSUES; MEETING WITH STATE LEGISLATORS AND ADMINISTRATORS TO DEVELOP PARTNERSHIPS THAT SUPPORT BLEEDING DISORDERS; AND PARTICIPATION ON HEALTHCARE CONSORTIUMS THAT SHARE COMMON INTEREST WITH THE ORGANIZATION.


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Board, Officers & Key Employees

Name (title)Compensation
Robert P Robinson
Executive Director
$103,990
Shanna Garcia
President
$0
Mayra Cantu
Vice President
$0
Taylor Mills
Secretary
$0
Mariellyn Swims
Treasurer
$0
Mike Towner
Past President
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$76,807
Related organizations$0
Government grants $56,992
All other contributions, gifts, grants, and similar amounts not included above$222,443
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$356,242
Total Program Service Revenue$130,386
Investment income $65
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events -$2,912
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $534,647

Grants Recieved

Over the last fiscal year, we have identified 9 grants that Bleeding Disorders Alliance Illinoi S has recieved totaling $35,229.

Awarding OrganizationAmount
The National Hemophilia Foundation

New York, NY

PURPOSE: CHAPTER CAPACITY BUILDING GRANT & UNITED WALK GRANT

$13,413
James & Minerva Weiss Foundation

Bannockburn, IL

PURPOSE: MEDICAL RESEARCH/AWARENESS WITHOUT RESTRICTIONS

$12,000
Hemophilia Alliance Foundation

Lansdale, PA

PURPOSE: PROMOTE HEMOPHILIA

$8,000
Jp Morgan Chase Foundation

New York, NY

PURPOSE: GENERAL OPERATING SUPPORT

$1,055
Eugene J And Olga E Porto Charitable Foundation

La Grange, IL

PURPOSE: GENERAL DONATION

$300
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$286
View Grant Recipient Profile

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