Chiari & Syringomyelia Foundation
- Assets
- $1.1m
- Revenue
- $979.4k
- Investments
- $767.2k
- Employees
- 5
- Location
- Staten Island, NY
- Founding
- 05/2008
- Data as of
- 12/2023
- EIN
- 26-1316274
Organization Overview
Chiari & Syringomyelia Foundation is located in Staten Island, NY. The organization was established in 2008. According to its NTEE Classification (G96) the organization is classified as: Neurology & Neuroscience, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2023, Chiari & Syringomyelia Foundation employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Chiari & Syringomyelia Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Chiari & Syringomyelia Foundation generated $979.4k in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 3.8% each year. All expenses for the organization totaled $767.6k during the year ending 12/2023. While expenses have increased by 3.7% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO ADVANCE KNOWLEDEGE THROUGH RESEARCH AND TO EDUCATE THE MEDICAL, ALLIED SCIENCES AND LAY COMMUNITY ABOUT CHIARI MALFORMATION, SYRINGOMYELIA AND RELATED DISORDERS
Describe the Organization's Program Activity:
Part 3 - Line 4a
THIS CONSISTS OF VARIOUS FUNDRAISING EVENTS IN WHICH DONATIONS WERE RAISED FOR FUTURE RESEARCH AND AWARENESS. THESE EVENTS CONSISTED OF EDUCATING ON CHIARI MALFORMATION, SYRINGOMYELIA AND RELATED DISORDERS THROUGH MEDIA, PRESENTATIONS AND VARIOUS EXPERT SPEAKERS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Paul J Farrell Chairman, Bd Of Directors | OfficerTrustee | 8 | $0 |
Cameron Kim Dawson Director | OfficerTrustee | 7 | $0 |
Lory Watson Director And Founding Member | OfficerTrustee | 5 | $0 |
Pamela Fenner Secretary | OfficerTrustee | 5 | $0 |
Catherine Loughin DVM Treasurer | OfficerTrustee | 5 | $0 |
James Rains Vice-Chairman | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $494,546 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $465,546 |
| Noncash contributions included in lines 1a–1f | $391,744 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $960,092 |
| Total Program Service Revenue | $0 |
| Investment income | $19,308 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $979,400 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $135,488 |
| Compensation of current officers, directors, key employees. | $20,323 |
| Compensation to disqualified persons | $241,070 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $50,506 |
| Payroll taxes | $29,106 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $3,380 |
| Fees for services: Accounting | $27,275 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $10,208 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $4,656 |
| Travel | $18,760 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $8,645 |
| All other expenses | $78,733 |
| Total functional expenses | $767,618 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $241,839 |
| Savings and temporary cash investments | $65,901 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $23,956 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $767,238 |
| Investments—program-related | $0 |
| Intangible assets | $1,212 |
| Other assets | $0 |
| Total assets | $1,100,146 |
| Accounts payable and accrued expenses | $682 |
| Grants payable | $0 |
| Deferred revenue | $8,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $8,682 |
| Net assets without donor restrictions | $1,091,464 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,100,146 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Ch Neurology Foundation Inc Boston, MA | $32,219,023 | $49,738,674 |
American Neurological Association Mount Laurel, NJ | $10,598,625 | $3,971,387 |
Pediatric Development Center Inc Pittsfield, MA | $3,049,711 | $2,093,583 |
Neurolipid Research Foundation Inc Millville, NJ | $65,224 | $1,070,224 |
International Neurotoxin Association New York, NY | $466,209 | $880,344 |
Chiari & Syringomyelia Foundation Staten Island, NY | $1,100,146 | $979,400 |
Neurofibromatosis Incorporated Northeast Burlington, MA | $842,757 | $616,977 |
Kamen Brain Tumor Foundation New York, NY | $190,809 | $178,136 |
The Dr Joseph C Maroon Foundation Glenshaw, PA | $561,171 | $209,267 |
Learning And The Brain Foundation Incorporated Bayside, NY | $28,912 | $0 |
A Step Toward Hope Inc Moorestown, NJ | $39,809 | $1,006 |
Neurotrauma Foundation Wayne, PA | $620 | $0 |
Baby Alex Foundation Inc Harvard, MA | $4,867 | $0 |