Tylers Hope For Dystonia Cure Inc
- Assets
- $489.5k
- Revenue
- $485.7k
- Investments
- $0.0
- Employees
- 1
- Location
- Alachua, FL
- Founding
- 05/2006
- Data as of
- 12/2021
- EIN
- 20-3733312
Organization Overview
Tylers Hope For Dystonia Cure Inc is located in Alachua, FL. The organization was established in 2006. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Tylers Hope For Dystonia Cure Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Tylers Hope For Dystonia Cure Inc generated $485.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.8% each year. All expenses for the organization totaled $365.9k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2013, Tylers Hope For Dystonia Cure Inc has awarded 22 individual grants totaling $2,658,596. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATION WAS ESTABLISHED TO ADVANCE RESEARCH FOR A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CONTRIBUTE FUNDS TO ORGANIZATIONS DEDICATED TO FINDING A CURE, DISCOVER EFFECTIVE TREATMENTS, AND TO PROMOTE AWARENESS AND EDUCATION OF THE NEUROLOGICAL MOVEMENT DISORDER DYT1 DYSTONIA.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Brian Scarborough VP Comm Affairs | OfficerTrustee | 10 | $0 |
Michelle Staab Treasurer | OfficerTrustee | 10 | $0 |
Richard A Staab President | OfficerTrustee | 20 | $0 |
Theodore B Seagroves III Secretary | OfficerTrustee | 1 | $0 |
Miles Kinsell VP Legal Issues | OfficerTrustee | 2 | $0 |
Patrick Banis Director | Trustee | 3 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $9,867 |
| Membership dues | $0 |
| Fundraising events | $387,109 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $85,822 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $482,798 |
| Total Program Service Revenue | $0 |
| Investment income | $2,942 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $485,740 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $171,429 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $45,675 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $599 |
| Payroll taxes | $2,963 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $7,605 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $869 |
| Total functional expenses | $365,889 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $209,554 |
| Savings and temporary cash investments | $263,375 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $16,605 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $489,534 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $489,534 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $489,534 |
Grants Awarded
Over the last fiscal year, Tylers Hope For Dystonia Cure Inc has awarded $296,429 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Gainesville, FL PURPOSE: DYSTONIA RESEARCH | $171,429 |
Durham, NC PURPOSE: DYSTONIA RESEARCH | $62,500 |
Ann Arbor, MI PURPOSE: DYSTONIA RESEARCH | $62,500 |
Grants Recieved
Over the last fiscal year, we have identified 7 grants that Tylers Hope For Dystonia Cure Inc has recieved totaling $68,541.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $41,650 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $13,861 |
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $5,600 |
State Chartered Credit Unions In Florida Jonesville, FL PURPOSE: SPONSORSHIPS | $5,500 |
Picard-Dannheisser Family Foundation Inc Pensacola, FL PURPOSE: GENERAL/OPERATIONAL EXPENSES | $1,000 |
Bj And Eve Wilder Family Foundation Inc Gainesville, FL PURPOSE: CONTRIBUTION | $510 |
Endowment Analysis
| Beg. Balance | $225,000 |
| Grants | $225,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Enduring Hearts Inc Marietta, GA | $4,514,675 | $1,999,139 |
Live Like Bella Inc Coral Gables, FL | $1,403,532 | $1,545,707 |
Its The Journey Inc Peachtree Corners, GA | $1,468,150 | $837,855 |
Ians Friends Foundation Inc Atlanta, GA | $2,303,183 | $1,075,992 |
The Cancer Foundation Inc Athens, GA | $2,195,862 | $959,444 |
Memorial Health Systems Foundation Inc Daytona Beach, FL | $11,077,264 | $1,174,706 |
Kruzn For A Kure Foundation Muscle Shoals, AL | $522,631 | $578,388 |
Touched By Type 1 Inc Altamonte Springs, FL | $407,632 | $573,412 |
Atlanta Cancer Care Foundation Inc Atlanta, GA | $402,119 | $605,731 |
Ateam Ministries Homewood, AL | $354,192 | $468,389 |
Gist Cancer Research Fund North Miami Beach, FL | $542,121 | $500,625 |
Tylers Hope For Dystonia Cure Inc Alachua, FL | $489,534 | $485,740 |