C&s Patient Education Foundation
- Assets
- $541.4k
- Revenue
- $399.6k
- Investments
- $0.0
- Employees
- 3
- Location
- Wexford, PA
- Founding
- 11/2004
- Data as of
- 12/2023
- EIN
- 20-0904691
Organization Overview
C&s Patient Education Foundation, operating under the name Conquer Chiari, is located in Wexford, PA. The organization was established in 2004. According to its NTEE Classification (E70) the organization is classified as: Public Health, under the broad grouping of Health Care and related organizations. As of 12/2023, Conquer Chiari employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Conquer Chiari is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Conquer Chiari generated $399.6k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 8 years, the organization has seen revenues fall by an average of (4.9%) each year. All expenses for the organization totaled $390.2k during the year ending 12/2023. As we would expect to see with falling revenues, expenses have declined by (6.2%) per year over the past 8 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Conquer Chiari has awarded 19 individual grants totaling $1,689,766. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
SINCE OUR INCEPTION, WE HAVE MADE TREMENDOUS STRIDES TOWARDS THE GOAL OF CONQUERING CHIARI, INCLUDNG:1.SERVING AS A RESOURCE FOR INFORMATION ON CHIARI AND RELATED TOPICS VIA OUR WEBSITE (WWW.CONQUERCHIARI.ORG) AND VARIOUS PUBLICATIONS. 2. SPONSORING RESEARCH FOR CHIARI VIA OUR CONQUER CHIARI RESEARCH CONFERENCE AND THE CONQUER CHIARI RESEARCH CENTER LOCATED AT THE UNIVERSITY OF AKRON, IN WHICH GRANTS FOR RESEARCH PROJECTS FOCUS ON IMPROVING DIAGNOSTICS, ASSESSING THE COGNITIVE EFFECTS OF CHIARI, GENETIC RESEARCH, AND OTHER CRITICAL AREAS. 3. PROMOTING AWARENESS THROUGH OUR CONQUER CHIARI WALK ACROSS AMERICA, WHICH IS AN ANNUAL FUNDRAISING EVENT CONSISTING OF A SERIES OF WALKS HELD ACROSS THE COUNTRY ON THE SAME DAY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
GRANTS FOR RESEARCH PROJECTS FOCUSED ON IMPROVING DIAGNOSTICS, ASSESSING THE COGNITIVE EFFECTS OF CHIARI, GENETICS RESEARCH, AND OTHER CRITICAL AREAS. MOST FUNDING IS DIRECTED TOWARDS THE CONQUER CHIARI RESEARCH CENTER (CCRC), THE WORLD'S FIRST RESEARCH LABORATORY DEDICATED SOLELY TO ADVANCING THE MEDICAL AND SCIENTIFIC UNDERSTANDING OF CHIARI MALFORMATION. THE CCRC IS A STATE OF THE ART FACILITY, STAFFED WITH DISTINGUISHED RESEARCHERS, WORKING DILIGENTLY TO: APPLY THE LATEST ENGINEERING TECHNIQUES AND ANALYSIS TO IMPROVE DIAGNOSES AND TREATMENT OPTIONS, LEVERAGE THE CONQUER CHIARI PATIENT REGISTRY TO STUDY THE EPIDEMIOLOGY AND NATURAL HISTORY OF CHIARI, FOSTER COLLABORATIONS WITH LEADING CLINICIANS AND SCIENTISTS TO ADVANCE THE CONQUER CHIARI RESEARCH AGENDA AND ACT AS A FOCAL POINT FOR THE CHIARI RESEARCH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Richard Labuda Executive Director, Secretary | OfficerTrustee | 40 | $78,750 |
Richard Kushner President, Board Member | OfficerTrustee | 1 | $0 |
David Lee Vice President, Board Member | OfficerTrustee | 1 | $0 |
Mark Tomczak Treasurer, Board Member | OfficerTrustee | 1 | $0 |
Blaise Nwotchouang Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $282,632 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $134,363 |
| Noncash contributions included in lines 1a–1f | $33,173 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $416,995 |
| Total Program Service Revenue | $4,216 |
| Investment income | $8,328 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$29,966 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $399,573 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $93,762 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $155,750 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $33,243 |
| Payroll taxes | $12,137 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $16,695 |
| Fees for services: Accounting | $8,672 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $13,432 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $23,992 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,856 |
| Insurance | $2,450 |
| All other expenses | $0 |
| Total functional expenses | $390,198 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $541,359 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $541,359 |
| Accounts payable and accrued expenses | $1,586 |
| Grants payable | $14,363 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $15,949 |
| Net assets without donor restrictions | $525,410 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $541,359 |
Grants Awarded
Over the last fiscal year, C&s Patient Education Foundation has awarded $93,762 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF AKRON PURPOSE: ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX | $11,804 |
NORTHEASTERN UNIVERSITY PURPOSE: C1000 COORDINATOR/AMINI, TESTING PATHO THEORY LOTH | $71,298 |
KENT STATE UNIVERSITY PURPOSE: ON-LINE ACT - PHASE II | $10,660 |